Your MS Society : Chronic Cerebrospinal Venous Insufficiency (CCSVI) - This Is MS Multiple Sclerosis Community: Knowledge & Support

View unanswered posts | View active topics

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Your MS Society

Page 1 of 1

[ 3 posts ]

Print view

Previous topic | Next topic

Author

Message

1eye

Post subject: Your MS Society

Posted: Mon May 07, 2012 9:30 am

Family Elder

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2602
Location: Kanata, Ontario, Canada

Sent to MPs for federal government of Canada:

From: Braid, Peter - Assistant 2
Sent: May 7, 2012 11:30 AM
To: MEMBERS' OFFICES/BUREAUX DES DÉPUTÉS
Subject: MS Society of Canada’s Carnation Campaign/Campagne de l’oeillet de la Société canadienne de la sclérose en plaques

Dear Colleague,

I am honoured to be leading the launch of the annual MS Carnation Campaign on Parliament Hill on Wednesday, May 9, 2012.

This year’s national campaign will run from May 10 to May 12, and thousands of volunteers in more than 280 communities across Canada will be selling carnations to raise money for MS research and services.

This Wednesday, I invite you to stop by the Foyer where I will be joined by MP Peter Stoffer, MP Hedy Fry, MP Louis Plamandon, MP Elizabeth May, and MS Society volunteers who will be pinning carnations on MPs as they head into the House for Question Period.

Please wear a carnation as a symbol of hope in the quest to end multiple sclerosis.

Sincerely,

Peter Braid, MP

Kitchener-Waterloo

**********************************************************************

sent to me:

During MS Awareness Month, have your say:
Help gain better support for people living with MS!
People living with MS need help to cope with the day-to-day hardships they face. During MS Awareness Month in May, ask your MP to champion better support for people living with MS!
Immediate action is needed to ensure people living with MS and their families have better caregiver support, more secure incomes and answers about a possible new approach to treating MS.
I am pleased to let you know there have been successes. The government has approved a CCSVI clinical trial, pending ethics review, and the new Family Caregiver Tax Credit takes effect this year which will help more caregivers including spouses. With invaluable support from people like you, the MS Society has advocated tirelessly to make both happen.
You can help build on these successes by sending a message to your Member of Parliament today.
Help us gain better support for people with MS and their families.
Please send a message now to your MP.
Your voice will make a difference!
Thank you,
Yves Savoie
President and Chief Executive Officer
Multiple Sclerosis Society of Canada

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Top

tiltawhirl

Post subject: Re: Your MS Society

Posted: Mon May 07, 2012 11:08 am

Family Elder

Joined: Sat Mar 17, 2012 8:47 pm
Posts: 122

1eye wrote:

Sent to MPs for federal government of Canada:

From: Braid, Peter - Assistant 2
Sent: May 7, 2012 11:30 AM
To: MEMBERS' OFFICES/BUREAUX DES DÉPUTÉS
Subject: MS Society of Canada’s Carnation Campaign/Campagne de l’oeillet de la Société canadienne de la sclérose en plaques

Dear Colleague,

I am honoured to be leading the launch of the annual MS Carnation Campaign on Parliament Hill on Wednesday, May 9, 2012.

This year’s national campaign will run from May 10 to May 12, and thousands of volunteers in more than 280 communities across Canada will be selling carnations to raise money for MS research and services.

This Wednesday, I invite you to stop by the Foyer where I will be joined by MP Peter Stoffer, MP Hedy Fry, MP Louis Plamandon, MP Elizabeth May, and MS Society volunteers who will be pinning carnations on MPs as they head into the House for Question Period.

Please wear a carnation as a symbol of hope in the quest to end multiple sclerosis.

Sincerely,

Peter Braid, MP

Kitchener-Waterloo

**********************************************************************

sent to me:

During MS Awareness Month, have your say:
Help gain better support for people living with MS!
People living with MS need help to cope with the day-to-day hardships they face. During MS Awareness Month in May, ask your MP to champion better support for people living with MS!
Immediate action is needed to ensure people living with MS and their families have better caregiver support, more secure incomes and answers about a possible new approach to treating MS.
I am pleased to let you know there have been successes. Since we have been dragged kicking and screaming into this fray by PwMS, and are now forced to bend to the will of the patient instead of big pharma, The government has approved a CCSVI clinical trial, pending ethics review, and the new Family Caregiver Tax Credit takes effect this year which will help more caregivers including spouses. With invaluable support from people like you, the MS Society has advocated tirelessly to make both happen.
You can help build on these successes by sending a message to your Member of Parliament today.
Help us gain better support for people with MS and their families.
Please send a message now to your MP.
Your voice will make a difference!
Thank you,
Yves Savoie
President and Chief Executive Officer
Multiple Sclerosis Society of Canada

Edited for clarity. :lol:

tilt

_________________
...and I for one, welcome our new Neurologist overlords!

My before and after CCSVI treatment video http://www.youtube.com/watch?v=RhosV4_DvWw
Visit my Lego Amusement Rides website http://www.brickshelf.com/cgi-bin/gallery.cgi?m=Bolliger

Top

1eye

Post subject: Re: Your MS Society

Posted: Mon May 07, 2012 12:35 pm

Family Elder

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2602
Location: Kanata, Ontario, Canada

Quote:

the MS Society has advocated tirelessly to make both happen.

I think if you examine the public record (brought to you by tax dollars, via Hansard), you will see the truth of that statement.

They have indeed worked tirelessly to get $10 M of taxpayer's money to fund as many clinical trials of their own choosing as possible. To help pay for those ones they have grudgingly agreed to. Now if they play their cards right, they may really get a-hold of some of the money the government will spend on this new trial.

Quote:

Incomes and answers.

That's what we are all about these days. Especially the incomes. Especially our own.

That $10 M would be well spent towards restoring some of the damage the Conservatives have recently done to the incomes of some families in Canada's national capital (some of whom are caregivers, too), along with services to the Canadian public (like libraries, archives, statistics keeping, food inspection, environmental protection, and national parks). Trivial things like that.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Top

Page 1 of 1

[ 3 posts ]

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Topics		Author	Replies	Views	Last post
Related topics
	CCSVI Society sued by MS Society in Italy	Cece	3	666	Tue May 15, 2012 5:00 pm 1eye
	UK MS Society [ Go to page: 1, 2 ]	LR1234	18	2308	Wed Nov 25, 2009 7:35 am HelenMSRC
	TO THE MS SOCIETY [ Go to page: 1, 2, 3 ]	Gordon	36	5258	Sun May 08, 2011 3:23 pm 1eye
	my feedback to the MS Society of BC [ Go to page: 1, 2 ]	Brightspot	15	3092	Wed Mar 31, 2010 9:35 am esta
	MS Society's money [ Go to page: 1, 2 ]	Miss_Feisty	23	2965	Wed Apr 21, 2010 5:57 am PCakes

Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Jump to: