This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi

IVUS in Medicover, a very good news

Dr. Schelling confirmed me a few days ago during a phone conversation that in the email-answer of Dr. Jaworski to me, it will be for him (Dr. Schelling) a good thing to co-operate further with the Medicover Hospital in Warsaw in the matter of the vein deformation as the cause of MS and to consult himself with Dr. Jaworski. Dr. Jaworski confirmed me further that he cannot imagine his work with the IVUS apparatus without the co-operation with Dr. Schelling. The day of hospitalization – the day before the IVUS treatment – the patient undertakes a MRI, and Dr. Jaworski and other medical doctors in Medicover Hospital have been schooled by Dr. Schelling, especially to understand after the MRI tests which veins cause the demielization changes. Until now this is not completely done with the USG tests. MRV tests were done (and for instance in Euromedic nobody even watched them), but no MRI test to see demielization changes in the veins, which are the very base for the IVUS operation, in order to affect these CCSVI changes in the veins. And in addition no interventional radiologist could not identify the demielization changes in the veins. The best reward for Dr. Schelling will be the better health status of the SM patients after the IVUS treatment. This is the most fascinating thing about the Good Angel Dr. Schelling for the MS patients

Second veryu good info

The next good news is the brain and spinal cord MRI for IVUS treatment preparation, which will be performed before the operation. My discussion with the technician radiologist, which performed this MRI on me according to the suggestions of Dr. Schelling.
Technician: “I saw the suggestions. I never performed similar sequences during MRI. I must tell you that in Poland nobody performed such tests before. I must prepare myself. I will keep contact with you.”
Me: “There is only one place in the world doing the same sequences according to Dr. Schelling. In Zurich by Prof. Schuhknecht (http://www.orl-zentrum.com/aktuell/aktu ... copic.html )
After a few days the technician of Medicover Hospital called me and set a day for the tests. I arrived on time. And only after 20 minutes my leg started to shiver and I had no control over it – the spastical nerve reactions of my left leg. The MRI was stopped after 20 minutes. Dr. Jaworski was immediately contacted about the problems. Even during my MRI Dr. Jaworski called and a new MRi test day was set. A Saturday was choosen so that I was the last patient and that there was enough time for the MRI. The technician said after the first stopped MRI that he treated the sequence as a test even for him and that the time was not in vain. The second MRI went smoothly and even Dr. Schelling was happy about the perfect images.

Regards
Rici

I must ask he same thing Google asked: Do you mean demyelinization?

If so, are veins causing demyelinizaion? How?

What is a USG?

There is not myelin in veins, I think.

How could they if there is no myelin? Now I think maybe you don't mean demyelinization...??

All I saw was micronasal and skull base surgery. The strange thing was the "Structured live cadaver operations." It sounds difficult to be a live cadaver. I wouldn't try it, myself.

I am glad to see you got a good MRI. I am just not understanding the rest...

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

USG is the Polish acronym for ultrasound.
Ultrasonografia => USG

With regards to the "demyelinating changes in the veins", I can interpret it as "the changes within the veins (CCSVI) that cause demyelination within the patient (MS)."

I think he is suggesting that they are doing an MRI of the brain and spinal cord, looking for MS lesions, and that the doctor believes he can tell which veins will be blocked based on where the brain or spinal cord MS lesions are found.

It seems unnecessary. If IVUS is used during the procedure, and the usual veins are checked, we already know where the outflow obstructions will be found: in the internal jugular veins and, in some patients, the azygous vein.

Better to look with ivus in the veins and see the actual blockages and treat those blockages, then to mess around with the MRI beforehand and try to discern where the vein blockages will be. Or am I missing something? The use of the MRI in this way might be helpful for research, but it does not seem helpful clinically when the patient is paying for it. We already have a very good way to see where the vein blockages are, using the flouroscopy during the venogram, plus ivus.

It is good to hear of more doctors using IVUS and hopefully using it well.

What on earth. Maybe for teaching? 'Live' as in real-time.

Forgive me my denseness. I did not guess that Rici and Dr. Schelling might be showing a physical relationship between venous problems and demyelination. They might have found a way of imaging this damage more directly with MRI, and using that information to direct an IVUS examination of the veins.

MRI has been downplayed here because it is less immediate than either DUS or venography, especially with IVUS.

Dr. Schelling has been concerned with MS for a long time. It sounds as if Rici is on to something, but shouldn't veins be treated regardless of any possible relationship to MS? I believe I am in as much or more danger from cardiac problems caused by both veins and arteries, than I have ever been from MS. My mother died on dialysis for her kidneys, lost to vasculitis, and possibly treatments for it, from the same thing that killed both her parents at 50 and 67: heart disease. She was also on digoxin, which didn't help any.

If the FDA warnings result in fewer CCSVI procedures being done, and research into the treatment being delayed, people will suffer more, and die younger. It is only, at the moment, a happy coincidence that some symptoms respond to this procedure, until some more scientific and legal work is done.



I wish both Rici and Dr. Shelling the best success possible, in treatment of demyelinization, and in development of new MRI and IVUS methods.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience