Hubbard Fondation conf w/Drs. Terry Wahls and John Cooke

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hubbard Fondation conf w/Drs. Terry Wahls and John Cooke

Postby cheerleader » Mon May 14, 2012 7:57 am

Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: Hubbard Fondation conf w/Drs. Terry Wahls and John Cooke

Postby Cece » Mon May 14, 2012 8:22 am

This study looked at 259 patients, 75% were not on DMD treatment. Patients were treated for CCSVI through the Hubbard registry and were self-referred to sites. Their MSIS and psychological scores were self-reported after treatment. There were no adverse affects or hospitalizations. 66% of those treated had overall improvement in physical abilities and MSIS scores at three months.

Part of this study was trying to understand why certain people, yet not all, benefit from treatment. In this study, women fared better than men, those with SPMS did less well than those with PPMS and RRMS. There was no difference in disease duration, in disability level, or age. Lifestyle, diet, exercise and supplements did make a difference in how patients did after treatment. Dr. Hubbard believes we need studies that combine lifestyle and aftercare as part of the equation in recovery.

Results from Dr. Hubbard's study! Exciting. I wonder what journal it will be published in. Dr. Hubbard is a neurologist, so it could be expected to land in a neurology journal. I would be interested in what the exact lifestyle, diet, exercise and supplement choices were that made a difference after treatment.
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Re: Hubbard Fondation conf w/Drs. Terry Wahls and John Cooke

Postby Cece » Mon May 14, 2012 8:29 am

Dr. Cooke would like his lab to study the endothelial cells in CCSVI. He would also like to create animal models of CCSVI beyond the mouse model. He has applied to all his previous sources to fund his research (like the NIH) He also applied to the MS Society, but this is the first time in his career he has been turned down. Controversy is keeping money away from this. We need funding to investigate this hypothesis.

Absurd and upsetting. On one hand, we are told it is not well enough researched, and on the other hand, research is being hindered.
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Re: Hubbard Fondation conf w/Drs. Terry Wahls and John Cooke

Postby 1eye » Tue May 15, 2012 5:42 pm

Cece wrote:
He has applied to all his previous sources to fund his research (like the NIH) He also applied to the MS Society, but this is the first time in his career he has been turned down. Controversy is keeping money away from this.

research is being hindered.

Controversy, disinformation, propaganda, driven petulantly, stubbornly irrationally, with full approval by their so-called "professional" organizations, and full funding from MS Societies, governments, and MS DMD vendors, by Dr. Nero Ologist. The shining genius of his age.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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