This is a question about diagnosis/screening for CCSVI.
As of April last year I have suffered symptoms similar to MS, fatigue, vision disturbance, brain fog, numbness. These symptoms hit me hard intially then subsided, then came back again and subsided again, the fatigue, brain fog, and numbess is now on/off, very random, I have days I'm fine and days I'm not, I seem to always be clear of symptoms at early morning and night (blood pressure?).
Due to these symptoms I have looked for an answer, it has caused a great deal of stress and anxiety, hard on my family and career. A number of doctors have run every blood test they can think off, all that came back was marginal low vitamin D. A neurologist has examined me four times over a year and found no issue, I have had a 3T brain MRI three weeks after inital symptoms - clear, another tens months after - clear. 3T MRI C-Spine, T-Spine ten months after inital symptoms - cyst on spine (no issue), other than that clear.
I have followed the forum for some time now and feel, even though I have no diagnosis, getting screened for CCSVI may be an option.
I'm located in Australia and to get screened here I'll need a doctor to write a referral, I have no idea how I could get a doctor to do this for me. What I am considering is travelling to Los Angeles or somewhere on the west coast for CCSVi screening, I also feel centers in the U.S. seem to be more up to date than whats available in Australia.
I have some questions if someone could help please:
In the U.S. is a doctors referral required for screening?
Diagnosis of MS required for screening?
If neither of the above is required can I just book in for screening?
What is the best non-invasive screening method available? And where is the best west coast location I can get this done?
I have read into MRI for CCSVI screening and it's costly, but if its the best option I will consdier it.