This Is MS Multiple Sclerosis Community: Knowledge & Support

Not sure if I'm being paranoid but all the navigation is missing off Dr Sclafani's website when it was perfect the other day. We've made a decision to go to him in July but tonight I wanted to complete the registration process but couldn't because everything beyond the home page has disappeared.

I just checked http://ccsvicare.com/. It all seems to be there. The page requires javascript to be enabled for the menubar to work. Perhaps javascript is disabled in your browser.

NHE

Seems odd because I could view it perfectly the other day but the good news is I sent him an email and he has since responded. I'll check out the java script

It looks like www.ccsvicare.org is the one that is down, at least on my computer too. www.ccsvicare.com looks good.

an update to the FDA situation at the Hubbards:
http://www.hubbardfoundation.blogspot.c ... quest.html

a snippet:

I am not sure what the difference is between a registry and a clinical study, or if the FDA is correct that the registry is a clinical study. I think it is good to specify the manufacturers of devices used. It makes sense for the procedure to be standardized if this is a study, so that the data from the first patient and the data from the last patient were obtained in the same way after the same procedure, but I am not convinced that this needs to be the case if it is a registry? And the diseases to be treated must be standardized! The disease being treated is central venous stenosis. There may be co-existing diseases including but not limited to those listed. But it takes us down the wrong path to say that the disease being treated is anything other than central venous stenosis. It may be a previously unidentified form of central venous stenosis -- congenital intraluminal abnormalities of the main cerebrospinal drainage veins -- but it is central venous stenosis.

I wish the Hubbard Foundation well as they navigate these requirements.