CCSVI linked to sinus venous thrombosis

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI linked to sinus venous thrombosis

Postby Cece » Mon Jun 11, 2012 11:22 pm

http://www.medscape.com/viewarticle/765 ... ws&spon=26

Well, this could be something for the stroke management portion of ISNVD next year.

Cerebral venous sinus thrombosis is a form of stroke that affects young people and often recurs. Researchers looked at these stroke patients and at healthy controls. The healthy controls showed no evidence of jugular venous abnormalities. But in the cerebral venous sinus thrombosis stroke patients, 60% had IJV abnormalities such as annulus stenosis (!), hypoplasia (!), IJV thrombosis and anomalous valve. These are hallmarks of CCSVI.

I had stenoses of the valve in both jugulars. I suspect that not only did this put me at risk for MS, it put me at risk for cerebral venous sinus thrombosis, which thankfully I have never had. But this is one more reason to seek treatment for these jugular abnormalities, and perhaps these stroke patients are patients in whom CCSVI can be researched without all the controversy. The researcher states that further research is needed to see if intervention (which would be jugular venoplasty) would have an effect on the recurrence of cerebral venous sinus thrombosis and long term outcomes of these patients. There is logic to why jugular abnormalities could contribute to cerebral venous sinus thrombosis, if they lead to reduced perfusion and slowed draining of the cerebral sinuses, which then creates conditions in which a clot could form. And there is logic to the possibility that treating the jugular abnormalities will lead to more rapid flow through the venous sinuses that drain into the jugulars, culminating in a reduced rate of recurrence of cerebral venous sinus thrombosis.
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Re: CCSVI linked to sinus venous thrombosis

Postby 1eye » Tue Jun 12, 2012 6:29 am

Regardless of whether or not cerebral venous sinus thrombosis is associated with "MS", or causes any symptom which may be claimed to be caused by "MS", by anyone, it is a human right to have everyone's jugulars clear, because they are there to support the human right to think. I have always been concerned that this human right is not mentioned in any treatise, or enshrined in any law anywhere. Thinking is as human as the opposing thumb, as walking upright, but it can be impeded or prevented by those who have an interest to do so, and nothing can stop them.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: CCSVI linked to sinus venous thrombosis

Postby Cece » Tue Jun 12, 2012 9:02 am

Most people do not know what it feels like to have impaired ability to think. It is as taken for granted as breathing.
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