CIHR internal memos

Cece · Post by **Cece** » Mon Jun 25, 2012 3:27 pm

http://www2.macleans.ca/2012/06/25/the- ... sufferers/

It sheds some light on the lack of progress in Canada.

PointsNorth · Post by **PointsNorth** » Mon Jun 25, 2012 4:49 pm

Light has a nice, sanitizing affect.

full title

The silent treatment: How Canada has failed MS sufferers

Internal documents show why Canada has not kept its promise to accelerate contentious clinical trials for MS

by Anne Kingston on Monday, June 25

tiltawhirl · Post by **tiltawhirl** » Mon Jun 25, 2012 5:42 pm

Reading this article really broils my fish.

Wtf is the matter with these people?

tilt

cheerleader · Post by **cheerleader** » Mon Jun 25, 2012 6:28 pm

wasn't it sad to read the e-mails, and see that the CIHR was more concerned with their image in the press, and the coordination of their "message" with the MS Society--than they were concerned with learning anything scientific. It looks like the e-mails from a PR firm, not a group charged with leading the way in medical research. So tragic. Anne Kingston is an incredible investigative journalist. Brava to her for putting this together--
cheer

1eye · Post by **1eye** » Mon Jun 25, 2012 6:51 pm

PointsNorth wrote:Light has a nice, sanitizing affect.

I heard sunlight was the best disinfectant. I don't think they meant dish-washing liquid.

In spite of it's cleanliness I doubt this issue will pass muster in many doctors' offices. My new GP has no magazines because they pass germs, but with all that sunlight, maybe he'll make an exception.

1eye · Post by **1eye** » Mon Jun 25, 2012 8:13 pm

Anne Kingston wrote:Marc Stecker, a person with MS in New York City who blogs on the much-read WheelchairKamikaze.com, puts it: “The marketing of CCSVI seems to have far outdistanced the science.” CCSVI advocates say the phase I/II trial, which will cost at least $1 million and take 18 months, is a waste of time and money. Eight safety trials, assessing over 1,300 procedures, show no serious complications. Beaudet himself calls venoplasty a “low-risk” procedure: “The biggest risk is re-stenosis.”

I don't know if I agree with Beaudet, but phase I/II is kind of redundant. It will only re-prove what we already know. What's $11M or 18 months between friends?

tiltawhirl · Post by **tiltawhirl** » Mon Jun 25, 2012 9:05 pm

I'm still gagging over this quote:
"Groetzinger praised the process: CCSVI research in Canada is moving at “lightning speed.”"

What planet is this person on? I'm speechless..

tilt

Cece · Post by **Cece** » Mon Jun 25, 2012 9:13 pm

Eight safety trials, assessing over 1,300 procedures, show no serious complications.

That's the line I wanted to quote into the FDA thread, if it's still around. 8 safety trials, 1300 procedures, no serious complications.

newday · Post by **newday** » Tue Jun 26, 2012 5:37 am

Wow! We is the states need to somehow expose the same because I'm sure the same back-room conversations are persisting here.

Cece · Post by **Cece** » Fri Jun 29, 2012 9:49 am

http://www.longwoods.com/newsdetail/2292

Resignation of Christine Fitzgerald from CIHR

This Is MS Multiple Sclerosis Knowledge & Support Community

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