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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Cece
 Post subject: CIHR internal memos
PostPosted: Mon Jun 25, 2012 4:27 pm 
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http://www2.macleans.ca/2012/06/25/the- ... sufferers/

It sheds some light on the lack of progress in Canada.
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PointsNorth
 Post subject: Re: CIHR internal memos
PostPosted: Mon Jun 25, 2012 5:49 pm 
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Light has a nice, sanitizing affect.

full title

The silent treatment: How Canada has failed MS sufferers

Internal documents show why Canada has not kept its promise to accelerate contentious clinical trials for MS

by Anne Kingston on Monday, June 25

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tiltawhirl
 Post subject: Re: CIHR internal memos
PostPosted: Mon Jun 25, 2012 6:42 pm 
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Reading this article really broils my fish. :evil:

Wtf is the matter with these people? :roll:

tilt

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...and I for one, welcome our new Neurologist overlords!

My before and after CCSVI treatment video http://www.youtube.com/watch?v=RhosV4_DvWw
Visit my Lego Amusement Rides website http://www.brickshelf.com/cgi-bin/gallery.cgi?m=Bolliger
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cheerleader
 Post subject: Re: CIHR internal memos
PostPosted: Mon Jun 25, 2012 7:28 pm 
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Location: southern California
wasn't it sad to read the e-mails, and see that the CIHR was more concerned with their image in the press, and the coordination of their "message" with the MS Society--than they were concerned with learning anything scientific. It looks like the e-mails from a PR firm, not a group charged with leading the way in medical research. So tragic. Anne Kingston is an incredible investigative journalist. Brava to her for putting this together--
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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1eye
 Post subject: Re: CIHR internal memos
PostPosted: Mon Jun 25, 2012 7:51 pm 
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Location: Kanata, Ontario, Canada
PointsNorth wrote:
Light has a nice, sanitizing affect.
I heard sunlight was the best disinfectant. I don't think they meant dish-washing liquid.

In spite of it's cleanliness I doubt this issue will pass muster in many doctors' offices. My new GP has no magazines because they pass germs, but with all that sunlight, maybe he'll make an exception. :-)

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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1eye
 Post subject: Re: CIHR internal memos
PostPosted: Mon Jun 25, 2012 9:13 pm 
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Anne Kingston wrote:
Marc Stecker, a person with MS in New York City who blogs on the much-read WheelchairKamikaze.com, puts it: “The marketing of CCSVI seems to have far outdistanced the science.” CCSVI advocates say the phase I/II trial, which will cost at least $1 million and take 18 months, is a waste of time and money. Eight safety trials, assessing over 1,300 procedures, show no serious complications. Beaudet himself calls venoplasty a “low-risk” procedure: “The biggest risk is re-stenosis.”
I don't know if I agree with Beaudet, but phase I/II is kind of redundant. It will only re-prove what we already know. What's $11M or 18 months between friends?

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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tiltawhirl
 Post subject: Re: CIHR internal memos
PostPosted: Mon Jun 25, 2012 10:05 pm 
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I'm still gagging over this quote:
"Groetzinger praised the process: CCSVI research in Canada is moving at “lightning speed.”"

What planet is this person on? I'm speechless..

tilt

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...and I for one, welcome our new Neurologist overlords!

My before and after CCSVI treatment video http://www.youtube.com/watch?v=RhosV4_DvWw
Visit my Lego Amusement Rides website http://www.brickshelf.com/cgi-bin/gallery.cgi?m=Bolliger
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Cece
 Post subject: Re: CIHR internal memos
PostPosted: Mon Jun 25, 2012 10:13 pm 
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Quote:
Eight safety trials, assessing over 1,300 procedures, show no serious complications.

That's the line I wanted to quote into the FDA thread, if it's still around. 8 safety trials, 1300 procedures, no serious complications.
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newday
 Post subject: Re: CIHR internal memos
PostPosted: Tue Jun 26, 2012 6:37 am 
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Wow! We is the states need to somehow expose the same because I'm sure the same back-room conversations are persisting here.

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Cece
 Post subject: Re: CIHR internal memos
PostPosted: Fri Jun 29, 2012 10:49 am 
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http://www.longwoods.com/newsdetail/2292

Resignation of Christine Fitzgerald from CIHR
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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