excel hospital's twitter saying their surgery is permanent

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: excel hospital's twitter saying their surgery is permane

Postby Cece » Fri Jul 06, 2012 1:16 pm

poor 1eye I TOLD you not to get your wife that copy of fifty shades....

:oops: :-D

munchkin, I wish you the absolute best with the surgery.
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Re: excel hospital's twitter saying their surgery is permane

Postby munchkin » Fri Jul 06, 2012 1:45 pm

Thank you Cece, I'm hoping for the best as well. Dare I say... :lol:
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Re: excel hospital's twitter saying their surgery is permane

Postby 1eye » Fri Jul 06, 2012 8:48 pm

I'm hoping for the best for you too. I'll expect a report!

I didn't know what fifty shades was but my wife told me. Hmmmm. 8O Ooooohhhhh. Never mind. :confused:
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: excel hospital's twitter saying their surgery is permane

Postby munchkin » Sat Jul 07, 2012 9:28 am

Thanks 1eye, I will post about how the procedure went and some of the changes that hopefully will happen.
This thread might become x-rated; instead of fifty shades of grey it will be fifty shades of red. :oops:
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Re: excel hospital's twitter saying their surgery is permane

Postby Cece » Sat Jul 07, 2012 2:59 pm

fifty shades of grey = muted colors before ccsvi treatment
fifty shades of red, blue, yellow, green, orange = seeing better now :)
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Re: excel hospital's twitter saying their surgery is permane

Postby munchkin » Sat Jul 07, 2012 3:10 pm

Isn't proper blood flow a wonderful thing, funny how some Dr's just don't seem to get it. :o
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Re: excel hospital's twitter saying their surgery is permane

Postby deirdrec » Sat Jul 07, 2012 7:26 pm

:smile: I just mowed the lawn today, It is very hot where I live and I am having no issues with the heat. So blow flow is amazing and for the moment I am enjoying every second. Thanks Dr. Hernandez for giving me my life back!
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Re: excel hospital's twitter saying their surgery is permane

Postby munchkin » Sun Jul 08, 2012 5:14 am

deirdrec - so glad to hear that you are doing so well :-D . Enjoy the weather!
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Re: excel hospital's twitter saying their surgery is permane

Postby DougL » Mon Jul 09, 2012 4:29 am

deirdrec wrote: for the moment I am enjoying every second. Thanks Dr. Hernandez for giving me my life back!

yaaaay. good for you
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Re: excel hospital's twitter saying their surgery is permane

Postby DARYLSWAIN » Mon Jul 09, 2012 10:35 am

I TALKED TO TINA AT EXCEL THEY ARE NOT SAYING IT IS PERMANENT....PLEASE DO YOUR RESEARCH WE WITH BLOOD FLOW ISSUES [CCSVI] DO NOT NEED FALSE EXPENSIVE PROMISES....[b][/b]
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Re: excel hospital's twitter saying their surgery is permane

Postby dania » Mon Jul 09, 2012 10:52 am

[quote="DARYLSWAIN"]I TALKED TO TINA AT EXCEL THEY ARE NOT SAYING IT IS PERMANENT....PLEASE DO YOUR RESEARCH WE WITH BLOOD FLOW ISSUES [CCSVI] DO NOT NEED FALSE EXPENSIVE PROMISES....[b][/b][/quote
Are you going to remove your posting that Excel is saying permanent On CCSVI Locator? Actions speak volumes. We do not need false promises nor untrue allegation being spread around. And even IF it were true Excel is being prudent that it is no longer there.
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Re: excel hospital's twitter saying their surgery is permane

Postby Cece » Mon Jul 09, 2012 2:50 pm

And even IF it were true Excel is being prudent that it is no longer there.

If it were true?
This is why I took a screenshot.

No, I won't be deleting anything. The posts on CCSVI Locator are in the comments section of a thread that is off the main page. I posted what I understand to be true and I supported it with the screenshot after they deleted the original twitter post. I acknowledge that the problematic post on their part was made in February, and it is now July, and they may have refined their message. But I don't think permanently should have ever been said at all. I remember a poster here who called a clinic (not Excel) back in 2010. She asked about wheelchair accessibility. The coordinator answered and then said that it didn't matter, she wouldn't need the wheelchair when she left. That sort of statement is over the line. Excel saying 'permanent' is over the line.
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Re: excel hospital's twitter saying their surgery is permane

Postby deirdrec » Tue Jul 24, 2012 11:27 am

I had my first Open INTERNAL JUGULAR VEIN RECONSTRUCTION on my left side after it was determined that the vein had restenosised and could no longer be angioed. This was the start of a journey that changed my life. Thanks to Dr.Hernandez, and his team of doctors I was given the opportunity to partake in this amazing surgery. In April I returned to have the right side done. This is keeping the blood flow going. For both sides I had multiple blocks and this was the most efficient and effective way for me to have this fixed. I am very fortunate that by doing this it appears to have put my ms on hold. I have gone from being numb from the waist down to being able to walk and even run. The fogging is gone and I now have 20/20 vision. I no longer slurr my speech and my hands are now capable with no numbness. With this type of surgery there is follow up and monitoring even if it is long distance. For me this was the next logical step in the CCSVI treatment.
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