This Is MS Multiple Sclerosis Community: Knowledge & Support

http://ms.about.com/b/2012/06/30/what-p ... aid-of.htm

The consensus among the readers' comments is that cognitive dysfunction is the biggest fear.

I don't know if that's true for everyone. Physical disability is pretty scary too. But cognitive dysfunction is frightening and unpleasant and disruptive to all aspects of life. Been there, done that... Cognitive dysfunction is also something which seems to respond to CCSVI venoplasty in many people, and which has a logical explanation for why CCSVI venoplasty helps.

I've been through the valley, and hands down the biggest fear I have is the loss of hope again. Without hope, all bets are off.

tilt

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...and I for one, welcome our new Neurologist overlords!

My before and after CCSVI treatment video http://www.youtube.com/watch?v=RhosV4_DvWw
Visit my Lego Amusement Rides website http://www.brickshelf.com/cgi-bin/gallery.cgi?m=Bolliger

agree!

Second fear for me is to lose the ability to move hands, feet, legs.....as long as you can move these.....there is hope.
I can not walk without help, but i can move/lift my legs etc, i can stand up, can walk behind a walker...

One more vote for Hope. Even tho my improvements were short-lived, the improvements experienced by others (& myself) makes me think we are now moving down the road to home.

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Albany 2010. Brooklyn 2011
Hurry up and wait.

my partner says losing the ability to walk.

For me its not knowing how my MS could progress.
MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

Not being able to support my child

Can't be afraid of any of those anymore. Even death. Unless my kids get it.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

that these symptoms someone named ms keep getting thrown in one basket and the causes and treatments are not looked into the way they should be.

Am most afraid my 19 y.o. daughter has MS.

In addition to having occasional arm numbness and tinnitus, she was just diagnosed with hypothyroidism (enlarged thyroid) which immediately brought to mind DrS's CCSVI case in which IJV collaterals ran through the thyroid.

1) That my children or grand kids might someday get it.
2) Hopelessness
3) Loss of cognitive ability
4) Loss of physical ability.

Funny thing; if you asked me yesterday I would have said the loss of physical ability was the biggest concern but after reading the comments of others I've changed my opinion to the above.