"what part of MS are you the most afraid of?"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

"what part of MS are you the most afraid of?"

Postby Cece » Sun Jul 08, 2012 1:30 pm

http://ms.about.com/b/2012/06/30/what-p ... aid-of.htm

The consensus among the readers' comments is that cognitive dysfunction is the biggest fear.

I don't know if that's true for everyone. Physical disability is pretty scary too. But cognitive dysfunction is frightening and unpleasant and disruptive to all aspects of life. Been there, done that... Cognitive dysfunction is also something which seems to respond to CCSVI venoplasty in many people, and which has a logical explanation for why CCSVI venoplasty helps.
Cece
Family Elder
 
Posts: 8989
Joined: Mon Jan 04, 2010 4:00 pm

Advertisement

Re: "what part of MS are you the most afraid of?"

Postby tiltawhirl » Sun Jul 08, 2012 1:54 pm

I've been through the valley, and hands down the biggest fear I have is the loss of hope again. Without hope, all bets are off.

tilt
...and I for one, welcome our new Neurologist overlords!

My before and after CCSVI treatment video http://www.youtube.com/watch?v=RhosV4_DvWw
Visit my Lego Amusement Rides website http://www.brickshelf.com/cgi-bin/gallery.cgi?m=Bolliger
tiltawhirl
Family Elder
 
Posts: 126
Joined: Sat Mar 17, 2012 8:47 pm

Re: "what part of MS are you the most afraid of?"

Postby Robnl » Mon Jul 09, 2012 2:05 am

agree!

Second fear for me is to lose the ability to move hands, feet, legs.....as long as you can move these.....there is hope.
I can not walk without help, but i can move/lift my legs etc, i can stand up, can walk behind a walker...
User avatar
Robnl
Family Elder
 
Posts: 422
Joined: Sun Nov 08, 2009 4:00 pm

Re: "what part of MS are you the most afraid of?"

Postby PointsNorth » Mon Jul 09, 2012 9:37 am

One more vote for Hope. Even tho my improvements were short-lived, the improvements experienced by others (& myself) makes me think we are now moving down the road to home.
Albany 2010. Brooklyn 2011
Calcitriol+D3 2013-
Hurry up and wait.
PointsNorth
Family Elder
 
Posts: 498
Joined: Mon Sep 04, 2006 3:00 pm
Location: LeftCoast Canada

Re: "what part of MS are you the most afraid of?"

Postby DougL » Mon Jul 09, 2012 10:04 am

my partner says losing the ability to walk.
User avatar
DougL
Family Elder
 
Posts: 364
Joined: Mon Jul 11, 2011 3:00 pm

Re: "what part of MS are you the most afraid of?"

Postby MarkW » Mon Jul 09, 2012 10:42 am

For me its not knowing how my MS could progress.
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
MarkW
Family Elder
 
Posts: 1142
Joined: Thu Oct 19, 2006 3:00 pm
Location: Oxfordshire, England

Re: "what part of MS are you the most afraid of?"

Postby Luvsadonut » Mon Jul 09, 2012 12:43 pm

Not being able to support my child
User avatar
Luvsadonut
Family Member
 
Posts: 72
Joined: Sun Nov 29, 2009 4:00 pm

Re: "what part of MS are you the most afraid of?"

Postby 1eye » Mon Jul 09, 2012 3:03 pm

Can't be afraid of any of those anymore. Even death. Unless my kids get it.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2874
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Re: "what part of MS are you the most afraid of?"

Postby blossom » Mon Jul 09, 2012 5:25 pm

that these symptoms someone named ms keep getting thrown in one basket and the causes and treatments are not looked into the way they should be.
Last edited by blossom on Tue Jul 10, 2012 8:52 pm, edited 1 time in total.
User avatar
blossom
Family Elder
 
Posts: 1360
Joined: Thu Dec 03, 2009 4:00 pm
Location: south western pa.

Re: "what part of MS are you the most afraid of?"

Postby HappyPoet » Mon Jul 09, 2012 5:29 pm

Am most afraid my 19 y.o. daughter has MS.

In addition to having occasional arm numbness and tinnitus, she was just diagnosed with hypothyroidism (enlarged thyroid) which immediately brought to mind DrS's CCSVI case in which IJV collaterals ran through the thyroid.
User avatar
HappyPoet
Family Elder
 
Posts: 1401
Joined: Thu Jul 09, 2009 3:00 pm

Re: "what part of MS are you the most afraid of?"

Postby David1949 » Tue Jul 10, 2012 4:29 pm

1) That my children or grand kids might someday get it.
2) Hopelessness
3) Loss of cognitive ability
4) Loss of physical ability.

Funny thing; if you asked me yesterday I would have said the loss of physical ability was the biggest concern but after reading the comments of others I've changed my opinion to the above.
David1949
Family Elder
 
Posts: 635
Joined: Mon Aug 23, 2010 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users