EJC - atlas / jaw alignment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

EJC - atlas / jaw alignment

Postby Zac » Tue Sep 04, 2012 2:00 pm

Hi EJC,
How is your wife, is she still under treatment with Amir, I am seriously considering signing up with him after visiting him for a consultation at his practice in Putney.
Everything made sense, both what Amir said and his clinical examples, I have been diagnosed with RRMS 18mths now and am positive his methods can help me, I hope you and your wife are as well as can be.

Best Regards.

Hope I'v posted right..
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Re: EJC - atlas / jaw alignment

Postby EJC » Thu Sep 20, 2012 2:52 pm

Hello Zac, Sorry I've not been on here for a while.

You can follow Emma's progress here:-

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18706.html

It's a long slow process, but it's slowly getting Emma back some normality of life in certain aspects.

I don't post very regular updates as there isn't a great deal to post sometimes.

Unlike CCSVI treatment which is quick procedure, Amir's treatment could take 3 or 4 years with Emma. Even all that still costs less than the single CCSVI treatment offered in Edinburgh.

Emma has got enough energy back to actually start physiotherapy to rehabilitate her wasted muscles. Something that a year ago would have been out of the question.

Amir's treatment is helping, is it the answer to MS? We don't know - even Amir doesn't know!

What Amir does know is that treating pwMS's jaw problems is providing relief of a vast majority of their symptoms. If we could find out why, we'd solve the puzzle for all!
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Re: EJC - atlas / jaw alignment

Postby Cece » Thu Sep 20, 2012 9:43 pm

Emma has got enough energy back to actually start physiotherapy to rehabilitate her wasted muscles. Something that a year ago would have been out of the question.

It's such a positive loop - more energy leads to the ability to do physiotherapy leads to more recovery.
Great to hear that she is doing well.
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Re: EJC - atlas / jaw alignment

Postby Zac » Thu Sep 20, 2012 10:44 pm

Thanks for your reply EJC, will check out yor link, fatigue is the main issue with me- as it kicks in my physical symptoms seem to worsen, had the tests in Glasgow, essential health clinic for CCSVI but was told I didn't qualify as a candidate, all open and running free, said I had mechanical issues!!
Recent lumber puncture results didn't show anything conclusive, neuro says I'm a difficult case to read, I have a very positive & optimistic feeling about what Dr Amir's treatment could do for me..

Regards.
Zac
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Re: EJC - atlas / jaw alignment

Postby EJC » Fri Sep 21, 2012 12:14 am

Fatigue is one of the big results Emma has had from Amir's treatment, or reduction of fatigue levels should I say.

Let us know how you get on.
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Re: EJC - atlas / jaw alignment

Postby Thekla » Tue Sep 25, 2012 2:21 am

I've been treated by Dr Amir since June 7. I've generally been doing well, excluding Sunday which reminded exactly how much better I've been. Sunday, my legs once again had that dead, numb exhausted feeling and my bladder was buzzy tingling. I was in the toilet umpteen times and even needed a change of clothes. I stopped everything and got a good night's sleep and Monday was better so I started the braces again Monday evening. I think I simply pushed too hard and slept too little. I had scrubbed the kitchen cabinet fronts Saturday and then didn't get to bed until after 1am and was up at 7:30 to do dishes and wash my hair. We had guests to watch the Singapore F1! Monday was good but today is even better. Bladder and legs are feeling normal. I had 2 cups of coffee this morning at 6:45 and didn't need a toilet trip for over 2 hours. My legs aren't working yet, but they don't feel dead exhausted. I think that 'yet' is a key word. I expect them to decide to work one day. It now crosses my mind to simply step over to the sink for water---I still use and need the rollator, but it never even crossed my mind before. I am now able to sleep warm under my duvet with no problems. this is a great change from last year when I couldn't move to get out of bed if I got warm. I am also wearing gold earrings today. Since the silver has been no problem, I thought I try other metals too. This is just 585 gold, not high carat, but everything bothered me a lot before. I couldn't wear any gold longer than 5 minutes. So more small changes. And also I have been able to put my earrings on without a mirror which must indicate some improved manual dexterity and feeling in my fingers. I have needed a mirror for years or even had someone else put earrings in for special occasions. It is difficult to quantify 'less numb' but this seems to demonstrate progress in the right direction. I absolutely don't want to go back again.
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