Hi Cece, been lurking but no news is no news.
Two years ago you remember I was Dr. Sullivan's first CCSVI. He said I had 40% stenosis in two places in my azygous, 40% in my left jug and 60% in my right. He ballooned all three. Improvements lasted almost a year. After an extremely stressful event last summer, it all went away and the elevator went down fast. I still cannot reconcile CCSVI improvements being affected by stress. My MS is progressive, so I'm not subject to relapses per se, but this hit me quick. How does stress cause webs on the valves of the jugulars?
I have not seen the MRV. Arata said he looked at it and sent it off to Dr. Haake for analysis. I will get a report in a few weeks. I don't know about you, but with the fog of travel, pre-procedure stress and post-procedure hangover, I don't remember what all Dr. Arata said in our 2 plus hours of talks. I'm sure it all was discussed, but... I have a telephone consult with him on Friday, and I'll bring it all up. Same story goes with the IVUS.
He did show me the venograms of all three (Dr. Sullivan did not and when I requested them, they said the computer that has them was sick with a virus.). The azygous looked big and healthy. He showed me that the blood below the valves was eddying and the valves were stuck in a mostly closed position (He offered no percentage). The after shots showed big and healthy jugs. I don't remember Dr. Sullivan mentioning valves. Dr. Arata said webbing was the cause of the malfunction and with the opening of the webbing he very seldom sees a reoccurrence of the problem. (He doesn't use the term stenosis or restenosis on most cases because he thinks most of the problems are with the valves and not an actual narrowing of the veins.)
As you may remember, I crushed my neck in 1988 and had C-4,5,6 fused. My first hint of a neurological problem occurred 5 years later. It has long been my contention that either the initial trauma or the subsequent surgery is to blame for my issues. I particularly wanted the MRV and IVUS because they may show something that has been so far been illusive. I asked Arata to be very mindful of this as he looked at the MRV and IVUS images. He said he saw no evidence supporting my theory. Maybe Haake will see something different.
I have been very interested lately in CSF flow. Besides the threads about it here, there was a Wall Street Journal article last week about "normal pressure hydrocephalus" and Alzheimer's. I am quite sure in my own feeble mind that my electrical problem is caused by a plumbing problem, either blood or CSF or both. I was told by the MRV tech that Haake can measure CSF flow.
Dr. Arata's new focus is on the Vagus nerve. It doesn't change the procedure, but he notices (and he has done a bunch) the CCSVI procedure improvements have to do with the autonomic functions controlled by the vagus, with is adjacent to the jugular. There is a video of a talk on that available on YouTube, just search for Dr. Arata
From what I've read, it seems most of your improvements are holding(?)
<div>There be no dragons ...Reese Palley</div>