plz ccsvi treatment in california?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

plz ccsvi treatment in california?

Postby wyndells99 » Sun Sep 23, 2012 1:46 pm

hi all i would really like to know all places in california where to get ccsvi treatment
clinic or doctor im starting to become disabled and have all symptoms. i need to get it done asap!
you can email me wyndells99@yahoo.com
thank you very much
wyndell
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Re: plz ccsvi treatment in california?

Postby PointsNorth » Sun Sep 23, 2012 3:35 pm

Hi W, you are in luck. I will send you an email.

PN
Albany 2010. Brooklyn 2011
Calcitriol+D3 2013-
Hurry up and wait.
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Re: plz ccsvi treatment in california?

Postby Cece » Mon Sep 24, 2012 2:08 pm

Wishing you the best. Some California IRs are Dr. Ponec and Dr. Saxon at Del Mar Vein Care and Dr. Arata at Synergy.

When you say you have all the symptoms, do you mean CCSVI symptoms? Cold feet (autonomic nervous system dysfunction), fatigue, cogfog, weakness, and vision issues have been suggested as CCSVI syndrome symptoms, distinguishable from MS symptoms and potentially alleviated by the procedure.
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Re: plz ccsvi treatment in california?

Postby wyndells99 » Tue Sep 25, 2012 2:42 pm

yeah i have all ccsvi symptoms and they getting worst
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Re: plz ccsvi treatment in california?

Postby MarkW » Wed Sep 26, 2012 12:27 am

Hope you will read:
chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18063.html
Kind regards,
MarkW
----------------------------
People with MS and their carers must understand that unless an invasive diagnostic procedure using CATHERTER VENOGRAPHY and INTRAVASCULAR ULTRASOUND in combination and performed by an EXPERIENCED INTERVENTIONALIST your diagnosis does not meet the gold standard. Both tools are required to diagnose all occurances of CCSVI syndrome (including webs and septums) in your neck and trunk. IVUS is also a crucial tool for your Interventionalist to use in order to determine the correct size of balloon for your vein valve.
I realise that many pwMS are struggling financially to have the diagnosis and are spending their scarce savings on this procedure. If you can only afford one procedure I hope you can get to one of these clinics. My findings on 24-September-2012 are that these 8 clinics are known to use the best diagnostic tools in patients including IVUS. The use of IVUS may involve an extra charge and should be agreed with the Interventionalist/Clinic. The clinics are:
Country...............Location....................Interventionalist...................Clinic
USA....................Brooklyn, NY...............Dr Salvatore Sclafani..............American Access Care
USA....................Evanston, IL.............. Dr Hector Ferral....................NorthShore University HealthSystem
USA....................Minneapolis, MN..........Dr Michael Cumming...............HCMC Hospital
USA....................Newport Beach, CA.......Dr Mike Arata.......................Synergy Health
Belguim...............Aalst........................Dr Beelen............................OLV Hospital
Poland................Grodzisk Mazowiecki .....Dr Zarebinski + Dr. Pawluczuk....Ameds Centrum
Poland................Warsaw.....................Dr Kielar + Dr Jaworski............Medicover Hospital
UK (Scotland)........Edinburgh...................Mr Donald Reid....................Essential Health Clinic
My personal recommendation is not to fly for 20 days after the procedure, especially if you have any incidence of thrombosis in your family.
--------------------------------
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Re: plz ccsvi treatment in california?

Postby wyndells99 » Wed Sep 26, 2012 8:23 am

thank you guys but i cant afford it do you know any credit unions or somewhere where i cant like 10000 dollars so i can get the ccsvi procedure?
thank you so much
wyndell
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