Neurological Res.-Oct. issue on vascular link of MS/CCSVI

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Neurological Res.-Oct. issue on vascular link of MS/CCSVI

Postby cheerleader » Mon Sep 24, 2012 4:03 pm

Thanks to all of the researchers for continuing to publish on the vascular connection to MS.
10 papers on MS/CCSVI
(My personal fav is the endothelial paper from LSU/UCSF)
http://www.ingentaconnect.com/content/m ... pt5w.alice

This is the way forward----
http://www.ingentaconnect.com/content/m ... 4/00000008

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby MaggieMae » Mon Sep 24, 2012 4:25 pm

Even with all the research that continues to be published on CCSVI and MS, my husband's neuro said to him at his recent
appointment that the interest in CCSVI is fading away. My husband had the procedure with Dr. Sclafani in April 2011 and his neuro has never asked him anything about it.
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby cheerleader » Mon Sep 24, 2012 5:42 pm

MaggieMae wrote:Even with all the research that continues to be published on CCSVI and MS, my husband's neuro said to him at his recent
appointment that the interest in CCSVI is fading away. My husband had the procedure with Dr. Sclafani in April 2011 and his neuro has never asked him anything about it.


Maggie Mae---
For many years, MS specialists said vitamin D didn't matter, exercise didn't matter, nutrition didn't matter, smoking didn't matter....and now that dialogue has changed. It takes about a decade for research to go from journals to doctors' offices. The vascular connection to MS will probably take even longer. My husband's neuro just recently said his "venoplasty must have done something, or he is just really lucky" because he has a reversal of gray matter atrophy on MRI, and no MS progression. She also just told him she'd read about PML (something he'd brought up 2 years ago) and she's now decided not to recommend tysabri to her patients.....
Hope your husband is doing well, and maybe someday his neuro might ask him about his venoplasty :)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby PointsNorth » Mon Sep 24, 2012 5:53 pm

MM,

My neurologist last week explained that CCSVI was on its way out. I shall send him the Zavidinov and Hubbard publications. However, I believe that the issue of restenosis must be addressed before venoplasty for CCSVI becomes widely available. I hope that this is not too far off!

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Hayes inspired Calcitriol+D3 2013-2014
Coimbra Protocol 2014-
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby cheerleader » Mon Sep 24, 2012 6:11 pm

PN--
CCSVI Alliance has all of the publications-pro and con, just under 300 papers now--you can send your doc the link.
Venoplasty cannot become standardized if there are no clinical trials approved. The FDA IDE decision has slowed this process down, but the interest in the vascular connection (including perfusion, endothelial dysfunction, cerebrospinal fluid, and CCSVI) continues to grow.
here are the papers:
http://www.ccsvi.org/index.php/componen ... ask=search
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby PointsNorth » Mon Sep 24, 2012 8:24 pm

Thx Cheer, nice collection. There is a lot of meat on the CCSVI bone to be sure. Neuros are going to continue to stonewall and I expect that the procedure will not gain acceptance in my country Canada until we can greatly improve our batting average in the vein game. We're running out of early adopters!

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Coimbra Protocol 2014-
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby Robnl » Mon Sep 24, 2012 11:02 pm

I think the 'general' neuro's, the ones we meet, are kept away from ccsvi by the higher neuro's in the monkey tree.
My neuro also says that he doesn't hear from ccsvi anymore, huh??

I see an accumulation in ccsvi research and trials and vascular correlation to neuro-degenerative diseases...

It's weird....but in the end it will be accepted...
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby MaggieMae » Tue Sep 25, 2012 2:32 pm

Robnl wrote:I think the 'general' neuro's, the ones we meet, are kept away from ccsvi by the higher neuro's in the monkey tree.
My neuro also says that he doesn't hear from ccsvi anymore, huh


From the comments our neuro has made to us about CCSVI, I couldn't agree more. Wish he would just read the research and think for himself.
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby CureOrBust » Wed Sep 26, 2012 6:06 am

Robnl wrote:I think the 'general' neuro's, the ones we meet, are kept away from ccsvi by the higher neuro's in the monkey tree.
My neuro also says that he doesn't hear from ccsvi anymore, huh??

I see an accumulation in ccsvi research and trials and vascular correlation to neuro-degenerative diseases...

It's weird....but in the end it will be accepted...
Most of the published articles I have seen are in vascular journals. I think when more articles are published by neuros, in respected neurological publications, the neuros will read the articles.
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby Billmeik » Thu Sep 27, 2012 7:11 am

I wonder how mainstream a neuro journal this is?
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Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Postby cheerleader » Thu Sep 27, 2012 8:21 am

Billmeik wrote:I wonder how mainstream a neuro journal this is?


here are its rankings, based on citations in other publications. kinda middling....
Neurological Research
2011 Journal Citation Reports®
(Thomson Reuters, 2011)
2-year Impact Factor: 1.522
5-year Impact Factor: 1.649
Ranks:
• 130/191 Clinical Neurology
• 197/243 Neurosciences


The important thing is that it's a neurological journal, not vascular. And it featured articles by several neurologists and neurological imaging specialists, not only vascular docs.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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