Commenting on his group’s findings, Dr. Mandato, stated:
“Results of the study were quite exciting and promising. We can attest to significant physical improvements…in greater than 75 percent of those with relapsing remitting and primary progressive forms of multiple sclerosis. Additionally, mental health scores improved in greater than 70 percent of individuals studied.
cheerleader wrote:I think we need to be upfront about the benefits people with PPMS can expect. It sounded like Dr. S. was honest about better energy, warmer extremities, etc....but this couple seemed to be hoping (praying and paying) for a miracle. That's very hard to see...and I'm afraid it does the science no good. It also gives naysayers more amunition. Dr. Zamboni was clear in his very first study that people with PPMS who had severe mobility issues had quality of life improvements, but no major changes in mobility. People with PPMS need to know this, reporters need to know this, internet chat rooms need to know this. It's heart-breaking...
Not being "dismissive and argumentative", but I have heard of other doctors who are no longer treating PPMS if the patient had a previous procedure and no benefit. This gentleman had two prior treatments. And he went into serious debt to travel to New York.
CureOrBust wrote:1. Dr S is usually clear (sorry if I have appeared to put words in your mouth ) that he does not treat MS, he is a "plumber" that treats CCSVI; and hence MS terms almost become irrelevant. Any gains for MS, at this stage of knowledge on CCSVI, are a bonus.
CureOrBust wrote:two things not to forget, even if it wasn't presented by the reporter; which is the problem with the media.
1. Dr S is usually clear (sorry if I have appeared to put words in your mouth ) that he does not treat MS, he is a "plumber" that treats CCSVI; and hence MS terms almost become irrelevant. Any gains for MS, at this stage of knowledge on CCSVI, are a bonus.
2. This guy with PPMS is a person, who taking away hope, may be taking away the only thing he has left. I am pretty sure from what I saw, he wasn't expecting to jump off the operating theatre's table, and perform star-jumps.
His treatment was out of a trial, self funded (with help from family). He and his wife are grown adults with freedom of choice, of which going into debt, is a choice. I see no reason to deny him or restrict his access to treatment.
I too am hoping and praying for the same miracle, but it doesn't mean I expect it. Personally, I think its the last point which may be limiting my response to MS treatments.
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