It was my personal observation today, that she seemed much more responsive to my verbal conversation with her. She made clear eye contact with me suggesting improvement in both her vision and cognition that had been damaged by the severity of her chronic progressive MS. She clearly was trying to respond affirmatively to yes and no questions with appropriate facial movements. I have not seen this degree of attentiveness and responsiveness by her in years. It was quite heartening.
is it possible that we as caregivers (or Doc's) are also subject to the placebo affect (or should I call it wishfull thinking)?
I think doctors are more aware of this, Doug. Facial movements, improvements in vision and cognition are quantifiable. And this doctor was very dubious about CCSVI venoplasty. For him to go public with this comment, after seeing Annette progress for many years, is important.
Annette's doctor went on the record with Avis Favaro and CTV, stating that although he was "initially skeptical", he now sees clinical benefit to her treatment. This is not supposed to happen in chronic progressive MS. This is why the Annette Funciello story was re-broadcast on CTV this past weekend, and updated at the end of the segment with this new information from her doctor.http://www.ctvnews.ca/video?clipId=881246
(also want to note that Annette was treated with stents...a controversial subject for many, but something that made a durable change for my husband, too.)