Double-standard in medical care for Canadians with MS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Double-standard in medical care for Canadians with MS

Postby erinc14 » Sun Oct 28, 2012 9:24 am

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Re: Double-standard in medical care for Canadians with MS

Postby Cece » Sun Oct 28, 2012 11:49 am

The Conservative-dominated Senate committee continues to refuse to hear from those who have multiple sclerosis (MS). Can anyone imagine a committee silencing a cancer patient, a heart patient or someone living in poverty? Why, then, are MS patients and a well-known Canadian CCSVI expert, Dr. Sandy McDonald, being silenced? Why is the government shutting down these important voices?
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Re: Double-standard in medical care for Canadians with MS

Postby 1eye » Mon Oct 29, 2012 5:03 pm

They like to say no? They think they know better than patients do, and some people have dangerous views? They're just doing what the doctor ordered? It's a partisan struggle? They just feel like it? Who knows?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
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Re: Double-standard in medical care for Canadians with MS

Postby 1eye » Tue Oct 30, 2012 9:41 am

I would like to say that I think the worst double-standard that treats "MS" patients like very much lower-class citizens is the way drugs are priced and prescribed. There should be legislation in both the United States and Canada, and elsewhere if there is democracy anywhere, preventing the kind of opportunistic predatory pricing of drugs that will take as much as inhumanly possible if the patient has ever been diagnosed with "MS".

It's as if we are all wearing T-shirts that say "rob me" on the front, and "cash cow" on the back. pw"MS" are definitely seen as made of nothing but money. If you have psoriasis, they'll sell you this drug for this price, but if it is "MS" you have, well, that's different.

Hi.

I'd like to thank you all for coming to this shareholders meeting.

We have to get as much money as possible, and we've got other expensive drugs that are not paying their way as much as we would like.

My idea is we should tell everyone that this is the first drug that reduces black holes.

Never mind that anything that can protect the brain will reduce black holes. Like anti-oxidants of various kinds, or marijuana, or, of all things, a successful CCSVI procedure. These people are desperate. There are at least 60 born an hour in this country alone.

They'll believe anything we tell them, because we're doctors, and specialists, and scientists, and for the most part, they're not. Besides, they have holes in their heads, don't they?

So what if psoriasis sufferers pay a much lower price? Get those organics boys to make a small wiggle in the formula, and we'll have the market cornered. We'll even pull the same trick as they did with 4AP, we'll extend the patent so the time starts counting from now.

They won't dare take anything else, because we'll have our buddies, the pessimistic neurologists, convince them it's either pay us the big bucks or keep suffering. Works on cancer patients all the time.

Maybe we can make up some of the bucks we lost when those dang Tysabri people started dying. What they're still dying? That's OK, the world soon forgets, and they're still desperate. Keep taking money as long as they'll keep buying.

Whatever they're on now, tell them they have to stop taking it, take some steroids, and wait a few months. Then they can have the privilege of paying us a lot of money, while they should probably not give any more to anybody else. Otherwise, more black holes! Of course they'll believe it, and they'll think we are protecting them from PML!

Price it as high as you want. What choice do they have? Nobody will ever have the money or guts to put this drug up against any of these other things.

Lets discuss this 4AP thing. They did enough clinical trials and spent enough money, so people started believing the old saw that various forms of animal-poison will fix them up good. Never mind that it's the same poison the makers have been babbling about for 20 years.

They spent all that money and proved it was good, so now those sufferers have to pay as many thousands of dollars as they're told, to get it.

And Campath... You have leukemia? Well, that's ok then. You can have it at this price. No? It's "MS"? Well, that's different. You're desperate! For you, it's a steal, at a much higher price.

You'll take it? We knew you would. What choice do you have? Desperate people spend desperate sums. Don't think it's really auto-immune? CCSVI theories be damned.

It's a contest between us vendors to see how much we can get out of these, what did you call them? Suckers, that's right. Never mind Obama. He won't say boo, even if they are smart enough to re-elect him.

Thank you for listening. To the slimiest goes the slime.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Double-standard in medical care for Canadians with MS

Postby erinc14 » Tue Oct 30, 2012 10:04 am

EXC :-D ELLENT !!
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Re: Double-standard in medical care for Canadians with MS

Postby Cece » Tue Oct 30, 2012 10:28 am

It's as if we are all wearing T-shirts that say "rob me" on the front, and "cash cow" on the back. pw"MS" are definitely seen as made of nothing but money. If you have psoriasis, they'll sell you this drug for this price, but if it is "MS" you have, well, that's different.

Repricing a drug higher because it is now an MS drug is so blatant. Abhorrent.
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