This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 9:18 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 3 posts ] 
  Print view Previous topic | Next topic 
Author Message
Cece
PostPosted: Mon Nov 19, 2012 1:21 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
http://www.nytimes.com/2012/11/15/healt ... d=fb-share

Quote:
In some cases, people with unexplained pain, fatigue and cognitive problems have been told they had chronic Lyme disease even though blood tests found no evidence of the infection.

Several controlled studies have found that long-term antibiotics did not help people who had already been treated for Lyme disease but had such lingering problems.
Quote:
Dr. Steere acknowledged that symptoms, sometimes disabling ones, do linger for months after treatment in as many as 10 percent of patients. Doctors do not know why. But, Dr. Steere said, “antibiotics are not the answer.”

The study showed that new symptoms of Lyme were caused by new infections of Lyme, not recurrences of the previous infection.
Fatigue and cognitive problems are common CCSVI symptoms.

It could be that in those 10%, the problem is not lingering lyme bacteria but that their jugular valves have been damaged by the Lyme bacteria (who chew on collagen) to look like this:
chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680-7155.html#p197931
Top
 Profile  
 
daniel
PostPosted: Tue Jan 08, 2013 11:57 pm 
Offline
Family Elder
User avatar

Joined: Tue May 19, 2009 3:00 pm
Posts: 196
Location: Toronto, Canada
has anyone with ccsvi been treated for lyme? (before or after ccsvi diagnosis)
Top
 Profile  
 
Cece
PostPosted: Wed Jan 09, 2013 8:41 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
There are Lyme patients getting treated for CCSVI. We've heard from a few here but I think it's being discussed in Lyme forums.

http://canlymec.ipower.com/forum/viewtopic.php?p=53121
http://www.mdjunction.com/forums/lyme-d ... 3515-ccsvi
http://www.healingwell.com/community/de ... &m=2372613
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 3 posts ] 

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Insights to CCSVI, Infections and degenerative diseases.

[ Go to pageGo to page: 1, 2 ]

NZer1

15

291

Sun May 19, 2013 7:19 am

vesta View the latest post

There are no new unread posts for this topic. Pseudo relapses

CNClear

2

1141

Mon Nov 02, 2009 2:48 pm

Jamie View the latest post

There are no new unread posts for this topic. Relapses - when do they occur?

IbRiz

9

1334

Sat Nov 14, 2009 11:54 am

IbRiz View the latest post

There are no new unread posts for this topic. Stanford Relapses?

[ Go to pageGo to page: 1, 2, 3 ]

Rokkit

39

7399

Sat Mar 13, 2010 12:25 pm

Rose2 View the latest post

There are no new unread posts for this topic. CCSVI and Lyme's

eve

2

1086

Wed Dec 01, 2010 4:10 pm

MarkW View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: