Sure glad I didn't wait!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Sure glad I didn't wait!

Postby fiddler » Tue Nov 27, 2012 3:52 pm

Just over three years ago I heard about CCSVI and its treatment. After a couple weeks of fevered research, I decided that Zamboni's theory made a lot of sense, and that given the rapid deterioration in my MS symptoms, I should take the earliest possible opportunity to be tested and, if appropriate, treated for CCSVI.

I'm SO glad I didn't wait for the testing and treatment to be made available in Canada because, if I had, I'd STILL BE WAITING FOR THE RESEARCH TO BEGIN! Geez, what a travesty!
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Re: Sure glad I didn't wait!

Postby erinc14 » Wed Nov 28, 2012 9:10 am

me too! maybe i'd be dead if i didn't . my condition is bad so very possible .
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Re: Sure glad I didn't wait!

Postby Cece » Wed Nov 28, 2012 9:20 am

I am glad I didn't wait also.
November 2009 was when a lot of us heard about CCSVI. :)
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Re: Sure glad I didn't wait!

Postby erinc14 » Wed Nov 28, 2012 10:35 am

yup. november 21 ! :smile:
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Re: Sure glad I didn't wait!

Postby msscooter » Wed Nov 28, 2012 10:42 am

Was treated in 2010. Glad I didn't wait either. Was using a cane or scooter prior. haven't used either since a few months after my procedure. Able to work productively again. able to walk around the neighborhood. able to do cooking and crafts. travel and plan for a living future. I have my life back!
I have been MSsooter but need to change my name after libration. Don't use a scooter anymore! I am LaFemmeMSketeer!
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Re: Sure glad I didn't wait!

Postby dania » Wed Nov 28, 2012 11:14 am

That's the thing, it does not work for everyone. Why? Who knows. With me and many others we improved after angio but we restenosed. Every time I got the blood flowing I improved. I even had 3 vein transplants where they took out a vein from my leg and implanted in my neck. My condition improved but even these veins collapsed. Obviously with me and others there is much more going on. Go figure.
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