This Is MS Multiple Sclerosis Community: Knowledge & Support

Came across this yahoo article about importance of aspirin and cognitive decline. Article doesn't talk about MS but Alzheimer's, ischemic stroke, and Vascular dementia. Is it just me but does anybody else see the correlation between CCSVI (importance of proper blood flow) and the positive effects aspirin has on the vascular system? Does anybody on the forum take aspirin on a regular basis??



Hard to believe most neuro's completely dismiss CCSVI!!

http://health.yahoo.net/experts/dayinhe ... ve-decline


Bob

I take a baby aspirin daily.
Stasis or slowing of blood flow could contribute to clotting in the microvessels of the brain. Dr. Zivadinov's research showed reduced blood vessels in the brain parenchyma. It's possible that a baby aspirin will reduce the risk of clotting in the microvessels.

yes, it is hard to believe. yet the last neuro. i went to about 6 yrs. ago and i requested that he test me as if i had never been branded with these symptoms someone named ms-which he did-and seemed so convinced that i would have the type they can diag. with blood work "because nothing was jiving." well it came back negative. i can still hear him saying "well you have something wrong".--- NO SHIT!! ---and yet he wanted me to go on tysabri his reasoning being i should try something. yeah right!!

but getting to the asparin-he found i had mthfr "genetic thing" that makes a person more susceptible to stroke, heart attack, clotting. he told me to take 325 mg. asparin and folic acid.

i tried to reason with him "like talking to the wall" as every other neuro. i came across for 20 yrs. that there are these bone spurs in my cervical spine that when i put my head back i can move better and i demonstrated. also i told him that different positioning my feet and hands will go from ice to toasty. also that at times on occassion if i was experiencing pain that i would take 3 or 4 asparin and my feet and hands warmed up. "i did not know about ccsvi at the time." but, i told him these symptoms all started after a bad fall and there's something pushing on something it shouldn't be and it's effecting some nerves and my blood flow--or why else would positioning have such an effect or why when i would take 3 or 4 asparin have such an effect on movement and from icey feet and hands to toasty. and couldn't he please refer me to a neurosugeon to look at this "not as the symptoms they named ms" but the fact that here i am a living beathing specimen that can actually show you what i am asking to be addressed--and just because you "think-theory-could be-you got something wrong" answer has "nothing to offer but a drug that could make me brain dead"---i really need someone to look into this deeper. if you can suggest that i take a drug tysabri and your answer to all the test you run were "well you got something wrong" then WHY can't you at least satisfy my plea as a patient and help me get rid of these bone spurs and see what happens"? i asked him- aren't you at least curious. you have no explanation and i'm sorry but these symptoms i have they call ms also fit perfectly with symptoms of bone spurs and stenosis yet you or no other neuro i've come across are not at least not curious.

my thoughts are to the neuro's if the shoe fits they can wear it and if not then ignore it--but there is a lot of incentive money wise in drugs-especially one like tysabri and especially if they own a facility that they can do the infusion.

so, how can they ignore it -- well they just can. and with ms and parkinson's and many other diseases it became a "specialty" they have basically been the dr.'s that lets say have the market "kinda like a monopoly" tied up with these diseases. and we as patients have been brain washed too thinking that a neuro should be the one we go to for help. and yes "good neuro's" that being hard to find should be in on all this. but, as a dog with a bone they don't want to share. so, the only way is keep insisting and when the number of patients get big enough--hopefully we can teach these old dogs some new tricks. they have to come up with something better than what they got - they've had what 80 or a 100 yrs. of owning these diseases and they've come up with what????????

i thought a monopoly or pyramid type business was in certain cases illegal yet it happened in medicine--and it's a crime. and sadly sickness became big business and not cureing but controling some symptoms "not to mention the what the controling side effects have has become a bigger business."

and thus the story of the asparin!

blossom, i hear your frustrations.... Many of us on this forum have the same frustrations with their neuro.
But what helps combat this frustration is using forums like this to express your feelings and realize you're
not alone!!

I believe it's important to educate yourself by indulging in the research being CCSVI, diet, or any other therapies
that will fight this disease; that's what i love about the internet and this forum. It allows us to share research
debate about it and challenge our so called health care professionals.


Regards,

Bob

thanks onion, tims is great and the people are great. i've tried a lot of stuff diet you name it got nothing. i'd say for 66 and too chubby i'm pretty healthy. but, there's not much left that moves very well on it's own.

your article on asparin--how about hugh's syndrom. think about it-a lot of people are misdiagnosed for ms and have it. i'd assume when they got their diag. lesions played a big part in that diag. that ended up being wrong. yet the rats say blood flow or spinal issues couldn't be the cause of mine and others symptoms.

my wife is also taking aspirin 50mg daily. We may increase to 75. In Slovakia you can buy only 25mg or 100mg or 500mg. So we need to halve the 100mg + 1 tablet 25mg. she has homozygous MTHFR too + sticky platelet syndrome.

bbe, i just wonder how many are actually tested for mthfr or hugh's. i was never told anything about mthfr until about 6 yrs. ago. i had asked about it with prev. neuro's but was told i had no problem. then the last one tells me i have mthfr which is a genetic thing so it didn't just pop up. makes one wonder what else they miss-or just don't check for.

i know when i take more asparin than i should i feel better. but my diet includes a lot of garlic and i don't want to end up with a brain bleed. with this sluggish blood and a crooked spine to navigate through and then veins that may not be up to snuff.

since they know hugh's can mimmic ms you'd think they would be more receptive to ccsvi or spinal issues that can hinder blood flow. it may be a little different but it seems to be pointing to getting the blood and csf fluid from point a to point b at the right speed. whatever the hold up might be would not be good.

with your wife having both have they ever wanted her on a blood thinner. i'd read some need more than asparin.

I take one aspirin 81mg. , a.m. and p.m.

@blossom I'm considering ordering an MTHFR test as I'm convinced I have a b12 malabsorption problem. I shall have a methylmalonic acid test along with homocysteine checked. Risks associated with MTHFR variants/high homocysteine include Venous/Arterial Thrombosis . . . . Folks in the ME/CFS camp seem obsessed with this stuff and they all seem to have B12/methylation concerns. That is where I got a hold on this stuff.

Hopefully I will be working with a Naturopath next weekend that can help me navigate these waters. I will report back . . .

_________________
Albany 2010. Brooklyn 2011
Hurry up and wait.

Blossom, nice post and probably the same conversation that goes on hundreds of times a day around the globe.

The quote above is what sticks in my mind.

I asked Emma's Neuro - forget about everything you know about MS (Which isn't a lot right!)

Why did a medical angioplasty procedure opening veins in Emma provide instant eyesight improvements, on the table and indeed a change of prescription? I would just like to understand that medically. He said "Placebo - she though she could see better!"

I then explained the TMJ treatment Emma had - that she'd developed such a painful jaw that she was living on a soup diet - we saw a TMJ specialist who with braces corrected the jaw problem but a side effect was it eradicated debilitating Neuralgia and substantially reduced fatigue - two of Emma's symptoms that had been attributed to MS.

I asked are you not interested in why this happened?

That's what I don't understand - a patient provides a medical specialist with details of a treatment that has helped them and they don't seem to show the slightest hint of an interest as it doesn't fit their model for the condition. I really just can't get my head around that.

i was told by an old time country dr. when i was younger and had to make a visit. he said to me that a good dr. talks to and listens to his patient. and most of the time the patient talking will tell the dr. what the problem is. and, sure maybe not as complicated as i have now but he always fixed me up.

and, who's to say how my life and health would be today if any of the dr.'s listened and at least give it a try. all i know is no dr.'s listened or tried and i am very disabled.