A good many things have been learned from the very interesting PREMISE study.
Best of all ..... another 30 pwMS have undergone the CCSVI treatment. We now can follow the course of health improvements ..... or not. The story certainly does not stop at the conclusion of the Trial. In fact ... I think it actually begins. I'm sure they will all be monitored for years to come.
As pointed out in a post above ^^^^^^ ...... there is conflicting information about the effectiveness of CCSVI treatment , presented by the SAME source . I think I " get it "
I would NOT be surprised to read that a good many of the PREMISE patients are doing very well ...... six months from now.
The PREMISE study was a Clinical Trial. Double - Blinded . I believe DB means .... that both the participants [ pwMS ] and the medical professionals involved ..... had no prior knowledge of who got treated for CCSVI .... or who got the Placebo treatment.
Eventually , ALL of the Trial participants recieved the CCSVI treatment. Or so we are told.
I like that the Trial was run by Neurologists . Dr.Z . Dr. B-WS. Two respected scientists.
I like that the PREMISE Trial concludes that CCSVI .... is a PROVEN medical condition.
I like that the PREMISE Trial concludes that treating CCSVI is SAFE , in Clinical Trials.
I want the PREMISE Clinical Trial results .... to be PUBLISHED .... in Neurologist Journals.
I want the PREMISE C T results ..... discussed at length .... at their Neuro Conferences.
For the last FIVE years the Neurological World has gone from stone silence to contept to ridicule of Professor Zamboni's discovery of CCSVI and it's relationship to MS and other Neurological conditions. As story's of patients getting CCSVI treatment surfaced , and some reported significant improvements in MS symptoms , questions of safety [ I agree 100 % with the Neurologists ] surfaced. I think this can now be put to rest. IT is SAFE.
I for one , think anything worth being tested or trialed , should at LEAST have 100 participants. As it makes the math easier. The PREMISE Trial was indeed , minimal.
The NMSS should now fund a larger - 1000 pwMS - CCSVI Trial . Forget the placebo part of the package. Get on with the Big Picture. It EXISTS and it's SAFE.
Once again the grassroots pwMS should exert pressure on the NMSS to spend the funding collected by pwMS interested in CCSVI ....... on a FULL and LARGE .... CCSVI Trial.
After all ..... it is YOUR money not theirs.
I nominate Dr.Hubbard to oversee and hire the right people.
Real Eyes Realize Real Lies