It’s been a few months since I last posted here, and it’s time for an update.
This thread was started based on a suggestion by Dr. Michael Arata that those who did not respond to CCSVI treatment should consider seeking help from an Atlas Orthogonal or NUCCA trained chiropractor. He also said that additional help might be available from a neurologically trained dentist.
In this post, I’ll update everyone on what improvements I’ve had. Then I’ll do another on what I think the patient should look at when evaluating these kinds of treatments.
After eight months of treatment by an AO, I really didn’t see any benefit. Although she fixed my atlas and C2 that were significantly out of alignment, my walking never improved.
Thanks to Dr. Arata’s recommendation to talk to Dr. Williams (DDS), I tried an Aqualizer. Within 30 minutes of using this little plastic dental orthotic, I could walk better. Unfortunately, the improvement was short lived and inconsistent. But whenever something changed (or was changed by a doctor) around my jaws, I walked better for at least a little while. Dr. Williams was also responsible for the recommendation about using a tissue as a jaw separator mentioned earlier in this thread that also brought some neurological improvement.
All of my local doctors said I also needed to see someone who did cranial sacral therapy. That doctor replaced the AO since she was also trained as a chiropractor. Again, when she adjusted things around my jaw, I did better for a few minutes here and there. She also recommended custom orthotics for my shoes.
I began wearing the Aqualizer in the house where my slightly impaired speech didn’t matter. When I left the house, I removed the Aqualizer and used the foot orthotics. Again, there wasn’t any significant, sustained improvement.
Elsewhere on this site, I read a post from Dr. Brian Rothbart that said it’s important to wear both the dental and foot orthotics together. BINGO!
Thanks to this “hoof and mouth” approach, although the changes are still intermittent, I am clearly walking better for longer periods of the day. When I go up the stairs, I can lift my knee and bend my ankle to get my leg up to the next step. These are big changes that are noticeable to family and friends. Going down the stairs is also easier and I’m no longer using my hip to throw my leg where it needs to go next. I now can stand longer and move more when cooking dinner and clearing up. I’ve even been in the mood to clean up all those piles of things that have accumulated around the house because you just can’t carry stuff when you have to hold on bilaterally.
Best of all, these changes have been fairly consistent for the past two weeks! I am now encouraged to think that, while I may still need my scooter to go out to places like the shopping mall, I will be able to use a walker to go to visit friends and family that live in homes with stairs. What a huge improvement that will make in my quality of living!