Rosegirl wrote:We, in turn, can and should express our skepticism, but we must do it with civility so we don’t drive them from the conversation. We expect our doctors to work miracles, but they are also human and some have stopped posting because of how, not why, we sometimes express our disagreement with their ideas.
Music wrote:Well done Rosegirl!
TIMS has been a great place to view other people’s experiences. While I did not see any improvements with the CCSVI procedure but others did, NUCCA helped me a lot structurally and I start my dental treatment in May. My new dentist thinks along the same lines as Dr. Amir – no, they do not know each other – and he does not read here at TIMS but I brought along an inch thick of reading from this site to my consultation…..haha poor guy….but he loved it. Will this help, I don’t know for sure but I’m willing to give it a go.
While we may be throwing out ideas and experiences for each other, aren’t we all just trying to help the next guy……at least I have found some things helpful. Every professional in the same field or not will have different opinions, as we all do. We all have different bodies, so different treatments might be required??
Thanks for starting this thread Rosegirl. Thanks to all for their input on TIMS.
On a side note: My dentist had a patient come to him for TMJ treatment. She had also been diagnosed with Chronic Fatigue Syndrome. After treating the TMJ, her CFS symptoms abated/went away and she is back to building houses in Argentina or wherever. I don’t know if this “cured” her, but it certainly did help. Sorry this is so long.
Rosegirl wrote:We have started a movement among some of our doctors! A few of them are now understand that they need a cross-discipline approach. Dentists and chiropractors, vascular surgeons and radiologists have begun to recognize that they are all able to treat our symptoms, at least in part. They all look at our xrays and see things through their own professional filters. And they are beginning to work together to share their expertise!
As patients, we all weigh how much time and money (and hope) we can spend on trying to find an appropriate treatment. Many of us move from neurologists to other practitioners. Thanks to sites like thisisms.com, we find out about the pros and cons that other individuals have found in their own journeys. While the information can be helpful, we are a small sampling of patients, and our search is complicated by other health issues and unique symptoms that many of us have.
As this topic indicates, atlas orthogonal/NUCCA chiropractors may be an answer for some of us, maybe to the complete exclusion of neurologists and drugs. Lately, we have heard that specific dental care can relieve symptoms for many of us. The challenge is to be our own advocates, and we have no training for that job. For those who do endless research, we may have a global overview of what the problem(s) may be. Then we have to find doctors and therapists who can address each issue, although they may not have thought of themselves as being able to treat “MS and neurological” issues. Getting them to read the latest by their colleagues is often next to impossible.
Luckily, some doctors are also reading TIMS! They want our input. They need to know what we think works, how and why. They are willing to talk candidly about their opinions.
We, in turn, can and should express our skepticism, but we must do it with civility so we don’t drive them from the conversation. We expect our doctors to work miracles, but they are also human and some have stopped posting because of how, not why, we sometimes express our disagreement with their ideas.
What we can do as patients (the beginning of a conversation):
BE A GOOD PATIENT. Bring all your records to each new practitioner, but don’t be upset if that doctor doesn’t want to read all six file folders from 20 years of treatment. Be as thorough and positive as you can while stating what your health issues are. Our doctors are human, and they can be overwhelmed by a desperate patient. We need to treat them like allies, not magicians.
BE SURE TO GET AND KEEP COPIES OF ALL YOUR MEDICAL RECORDS. Now that even xrays and scans are digital, our doctors are used to giving patients a disk with all relevant information, and WE can send it to others to review. No more waiting for a busy doctor’s office to get around to our requests and hoping it gets done in a couple of weeks!
FOR OUR DOCTORS WHO READ THESE POSTS:
Please, keep us informed. We are the forefront of patients you want to hear from. We do our research and we are, at least in some cases, willing and able to be the first patients in studies. Others may not have the resources (strength, time or money) to try new treatments now, but they still benefit from the collective experience.
Let's keep this conversation going.
vesta wrote:Hi Blossom:
I don't know what you have tried to correct the skeletal problems and this suggestion may be of no use. I would try to find an Osteopath who uses Kinesiology (Muscle Testing - I describe it on my blog) to "ask the body" where and what the problem is and how to solve it. (I think Dr. Amir uses Kinesiology. Some people think it's witchcraft, but it has worked for me, although one needs a good practitioner.) Just an idea.
MS Cure Enigmas.net
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