When CCSVI fails, try AO and/or the Dentist

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: When CCSVI fails, try AO and/or the Dentist

Postby blossom » Sun Apr 14, 2013 4:23 pm

thanks vesta. seems finding good any kind of dr.'s are scarce in my neck of the woods. but, i'll try. makes sence. and, i don't think kinesiology is witchcraft. in fact, i feel energy med. when harnessed correctly even though we are in the dark ages compared to the ancients because of so called westernized med. -- energy med. is going to be most of what we need if not all. can get deep. but, more and more science is proveing it is there for all. i have not been able to do it" yet" obviously but there are those that do.

again thanks
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Re: When CCSVI fails, try AO and/or the Dentist

Postby dania » Wed Apr 17, 2013 2:18 pm

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Re: When CCSVI fails, try AO and/or the Dentist

Postby Rosegirl » Fri Apr 19, 2013 8:21 am

Amir wrote:
civickiller wrote:When I tried a Upper Cervical Chiropractor, i felt the same benefits they say they felt with CCSVI when he corrected my misaligned C1"Atlas" then i saw Dr Amir's jaw treatment which my jaw is messed up then he said that correcting the jaw misalignment will correct your C1 misalignment. Everything fits together so nicely

Do i think its all about closed veins? no, i think CSF plays a bigger factor than we think


Civickiller Just a minor correction!

Jaw correction corrects the Atlas in many instances. I would say at least in 75% of the cases.
This is a copy of what I recently posted on another thread:
"It has been a long time since I wrote anything about the Atlas.

I shall try and enlighten you with my experiences over the last year or so.

I start many new patients each month. Almost all of them have Atlas/Hip asymmetry at the outset.

About a year or more ago I decided that I am not going to correct the Atlas first but sort the jaw out for a few months and then re evaluate.

Surprisingly I have only had to correct one Atlas in the last 3 months. All the rest corrected with orthodontic/TMJ treatment.

When the Atlas is out of synch the hips are also always out of level. When the Atlas corrects the hips level out.

Therefore in general a patient can self check their hips to know if the Atlas is out. The higher hip when palpated just above the iliac crest is always relatively more painful than the lower side. When level the pain disappears.

Experience also shows that, very rarely, the hips are out of line on their own without Atlas involvement. These can be quickly corrected with a traditional chiropractic adjustment which is a very straight forward procedure requiring only a couple of minutes effort.

Atlas symmetry, jaw/dental symmetry and hip symmetry appear to be very interdependent and major players in overall skeletal symmetry and hence optimal function."


Here’s a recap of this week.

It wasn’t a good one for walking. Sometimes, my left knee would just refuse to bend. Everything was moving slower. On the other hand, my balance is continuing to improve and the surprise improvement in bladder issues remains constant. And, as always, while the BIG improvements don’t seem to last more than an hour, the bad stuff tends to work the same way.

At this week’s appointment with the AO chiropractor, she asked if I thought the problems above were because my atlas was out of adjustment. I assumed that was the case. As it turns out, however, the atlas was fine.

What wasn’t fine was that the cranial bones that are supposed to move didn’t move. My jaw was off to one side. She was able to adjust both of those. Then she found that the pterygoids (muscles that connect the upper and lower jaws) were back in spasm.

She asked if I’d been using both the tissues (see above) and the Aqualizer. I have been using both on a regular, daily basis.

I didn’t have the opportunity to ask her directly, but I’m making the following assumptions based on where and how she has treated me over the last six months. This is nothing more than an observation by someone with no training, so remember the source!

While she checked some cranial areas regularly, she didn’t check the pterygoids until I asked about using an Aqualizer. She didn’t know much about it, but thought it wouldn’t hurt. For a couple of weeks while I was waiting for delivery, those jaw muscles were in a tight spasm. She then had a before and after comparison when I got some immediate improvement (I got one in the mail and wore it for 30 minutes while driving to see her).

I assume she is surprised to see some similarity with Dr. Amir’s comments quoted above.

When I got home, I was moving much more smoothly and more quickly. The improvements have held through this morning.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby dania » Wed Apr 24, 2013 5:53 am

Still doing the little jaw trick. It helps me.Yesterday I had my first spinal decompression treatment on the Cox 7 table. It also helped. Big time. It felt so good to be stretched. The feeling in my hands, arms, legs and feet became normal while the chiro was doing it. I noticed I was tolerating the heat much better afterwards. Sitting straighter. And inexpensive $45. Will be having it done twice a week, Tuesdays and Thursdays as those are the days he works at this clinic. Also noticed that the clicking of my jaw is better.
A big TY to Dr Flanagan for all his help.

http://www.youtube.com/watch?v=sqgNZj25bUk
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Re: When CCSVI fails, try AO and/or the Dentist

Postby Rosegirl » Sat Apr 27, 2013 3:11 am

Has anyone else tried the rolled up tissue and/or the Aqualizer? If so, please let us know what happened.

My progress isn't a straight path, but most days I'm walking a little faster and steadier than a month ago. I told the chiro that I feel like a toddler just starting to walk. Something is demanding I try, but the rest of me is confused about what it's supposed to do. The chiro says that's because the nerves are regenerating, so he's very happy about it. I've been seeing the AO chiro for about six months now and I can now hold an adjustment about six weeks at a time, so things are moving in the right direction.

I was also told by a dentist that this method tends to create the quickest improvement in people with neurological problems. For others whose condition is degenerative, it's a longer process because the patient must also rebuild tissues that have been damaged.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby CureOrBust » Sat Apr 27, 2013 4:53 am

Rosegirl wrote:Has anyone else tried the rolled up tissue and/or the Aqualizer? If so, please let us know what happened.
I have tried it, and am using one now. No effect good nor bad in regards to my MS.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby dania » Sat May 04, 2013 6:35 am

Here is where I am today. Thanks to Rosegirl with the little jaw trick that lead me further to discover my problem. After reviewing my upright MRI Dr Flanagan saw that I had a very severe case of Cervical Lordosis and Kyphosis.
http://www.drkarencann.com/wp-content/u ... iagram.jpg
Upon his advice I have been having spinal decompression treatments on a Cox 7 table. I had 2 last week and 2 this past week. I have been improving, slowly but surely. Less contracted muscles, for the first times in years. The muscles in my bowels are working again, making it easier to defecate and I realize people do not talk about these types of symptoms but I can now pass gas. Before it was not able to escapes my body due to a severely contracted sphincter muscle. I am generally stronger, for instance I can now use my fingers in my left hand to pick up things. Easier to transfer myself. And here's a big one, TOLERATING HEAT much, much better. I am usually so hot, especially my head, feels like I have a fever of over 101 degrees and never feel cold. But in the last week I now feel cold in the shower which before I felt so hot and I can now feel the temperature of hot and cold water while before I was burning myself. I can now sit in my wheelchair without feeling someone is shoving me down to the floor. Able to use a utensil to bring food from my plate to my lips and drinking without using a straw. Typing again with both hands. I feel more normal in my skin if that makes any sense. I just feel as if things are returning to normal very slowly.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby blossom » Mon May 06, 2013 8:27 pm

i know this is a different approach but food for thought.

http://www.talkinternational.com/toothchart.html
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Re: When CCSVI fails, try AO and/or the Dentist

Postby vesta » Tue May 07, 2013 9:06 am

Thanks blossom. Someone once told a friend of mine that his ankle problem was related to his teeth. Keep us posted on your back treatments.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby dania » Thu May 09, 2013 8:08 pm

It has been 3 weeks(6 treatments) of spinal decompression on the Cox 7 table. I am improving every day. My contracted muscles, which effected about 90% of them has been reduced to about 20%. I can type with both hands again, pick up them with my left hand, sitting straighter, my left hip which was pulled in to the right is moving back to where it should be, heat tolerance better, muscles in bowels working again, food tastes better/more normal, stomach is growling again, sensation of touch/feeling becoming normal, physically much stronger/able to do so much more, dreaming again, jaw no longer clicking when I open my mouth, color in face use to very flushed now almost normal color, stood up this evening and turned off the light on the fan on top of the stove (been at least 6 months since I last did that), muscles in my legs starting to work again... I could go on and on. I am thrilled at the progress and the Dr Huang, the chiro, is pleasantly surprised. He did not expect any changes, very skeptical. I told him I would get better but I could tell he was not optimistic. I believe he has changed his mind. He feels the changes in my body. I was so stiff the first time. My muscles were so contracted I was almost a statue. He probably though I was too far gone. Well, Dr Flanagan we will prove those who do not believe that it is possible.
A million TYs
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Re: When CCSVI fails, try AO and/or the Dentist

Postby Rosegirl » Fri May 10, 2013 5:03 am

Oh, Dania, what a wonderful thing to report. I hope that this rapid recovery continues for you. Please continue to keep us posted.

I have been thinking about the journey we all make as patients. From the "MS" neurologist to the IR who does CCSVI venoplasty then to the chiropractor and maybe also to the special dentist. We are the only ones who are in charge of our care, and there is no one who can coordinate these different specialists. All we have is determination, and hopefully, enough time and money to keep trying new things and reporting back to others.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby Thekla » Mon May 13, 2013 7:26 am

Rosegirl, I think you've very accurately stated the problem,

"We are the only ones who are in charge of our care, and there is no one who can coordinate these different specialists. All we have is determination, and hopefully, enough time and money to keep trying new things and reporting back to others."

We have to research and find our answers before our money runs out and most of us are doing this alone.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby Thekla » Fri May 24, 2013 2:15 am

I just thought I'd share this here as well, It is just 2 weeks short of a year that I've been being treated by Dr Amir. Initially, I just expected to go to London for a consultation and then try and proceed with treatment locally, or at least somewhere in Germany, but then I thought with my condition and age, I just don't have time to be part of someone's learning curve if not necessary. We drive to London from Frankfurt about every month and it is worth the stress and sleep deprivation, especially on a day like today. I woke up 15 minutes early, at 6:15 and did exercises in bed, had coffee, solved the cryptic conundrum puzzle, got washed and dressed and feel good! I'm walking better (with my rollator), balance is more secure, bladder is good, there is even a bit of sun, it is a good day. I am so glad I convinced my husband to fly to London a year ago (June 7). My life is totally changed. I am looking forward to life.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby Amir » Fri May 24, 2013 8:53 am

This is quite beside the gist of this thread but I am reading a book:
"Racketeering in medicine"
http://www.amazon.com/Racketeering-Medi ... n+medicine
I came across a great orthodontist practicing in the 60's in Texas Dr William Kelley who had adapted Gerson Therapy for the treatment of cancer. This "Cranial orthodontist/maverick/physician kept impressive and excellent medical records of his patients .... and on scrutiny it was documented that many of Dr Kelley's cases had gone into remission" ...

I recommend you all read this book to get a better perspective about your own illness.
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Re: When CCSVI fails, try AO and/or the Dentist

Postby Thekla » Fri May 24, 2013 10:38 am

sounds like it is along similar lines the Politics in Healing: The suppression and Manipulation of American Medicine by Daniel Haley which I found quite enlightening. I wonder how many treatments and even cures have been quashed for greed or ego.
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