Thanks for keeping us posted. This all sounds very promising. Is this Dr. offering (CCSVI) patients this
procedure outside of the study, or is it strictly for his study? And if you don't mind me asking, how are you doing
since your procedure?
Hi DLynn, thanks for the post. Too kind.
There's nothing I would love better than to throw the doors open and tell everyone to come on in.
Unfortunately that's a bit above my pay grade. Remember he was/is doing all of this on his own dime. Unheard of in the CCSVI treatment world. He's a big picture kind of guy, he wants to do things to the best of his abilities and have it stick, and the only way that happens is by fastidious documentation. He is doing that. Yes it is slower than any of us would like, but he understands the process.
If he wanted to hang a shingle and get patients he could have done that long ago.
Hopefully he will get to the conference in Canada in September.
In the meantime, he is evaluating and measuring progress. As stated before,
there is no certainty that anything is there. If not then we move on, but I am a
true believer, I do think he is on to something that has been missed, but
that is just another opinion among many.
I am doing great. Unable ($$) to get to Stanford for a 4 year follow up, but considering
I am writing this in 100 degree heat here, can say it's probably not too
bad . Had the kids the entire summer, 10,6,3. They are a handful.
Would not have dreamed of doing that in '09, so I'd say things are doing just