Hello all. Wanted to do a small update, now with pics!
Anyways, much more to talk about, but for now some snippets of info:
1. 4th and final patient for now, has been treated. It's been nearly two years since the first patient when this all
started. He wanted to stop last year but I convinced him at Christmas perhaps one or two more would be good.
Please keep in mind he is funding all of this himself, including the brand new Siemens UT machine. The tech is par excellence with scanning. He's done all the scans from the start and knows what he is doing, plus is an instructor at a school.
2. I am intimately familiar with 3 out of the 4 patients, and have been there for every treatment and a good portion of the follow ups if not the prescans also. It's been a fascinating journey, though I'm principally a moral support/answer questions kind of function. People digging into this for the first time (as in patient #4) have oodles and oodles of questions, you know, the basic stuff. I'm posting below some very interesting numbers and one actual scan. These scans were taken on a weekly basis for four weeks prior to treatment, as was the case with the other patients, including copious follow up, up to and including corollary MRV scans done both locally, and with #4, a drive to a well known university up North for an MRV. Will get a copy of that DVD next month and take a look, along with the Dr. Anyways here's the numbers, which bolster his theory (which he has had from the outset), about the transitory nature of stenoses. I wasn't sold at first, I am now. Keep in mind these are weekly scans. No two are alike. That's the point. How can we image and treat something that's here today gone tomorrow? How about a treatment that is of a more permanent nature (no, not stents though mine have performed quite nicely thank you very much), which delves into the cause of the stenosis in the first place, as opposed to treating the symptom, which has so much variance? #1#2#3#4
Here is the scan though I forgot exactly which of the above it matches. I believe it is the one that he is pointing to with his finger, really narrow. His words were that somewhere around 1cm +/- .10-.20 would be a good opening. That was narrowed down to almost nothing.
Now, the last patient was treated on Saturday, the entire wonderful family came from all over Southern California. Scans were done immediately before, and after. Her and the previous patient both had several things in common: they were both non-ambulatory, and both had very weak veins. In fact the treatment was delayed for quite awhile trying to get an IV established. (IV is there as precaution only). Once that was done the treatment went relatively quickly. Kicker is, this is the first time that the veins opened up before the person left the treatment room. Her two lovely girls, both young, don't know what it's like to have Mom walk. Hopefully that will change as it did for #3 to an extent, but expectations are realistic. After doing every drug imaginable, refusing Tysabri, doing a stem cell transplant, well lets just say she's got her head screwed on straight, no illusions. Will keep updated on her progress or lack thereof. Follow up scan in one month.
Patient #3 continues to improve along with #1. She is now able to shower herself, get in and out of bed, into the chair etc. etc. Her progression has stopped. She has experienced improvements. Not too bad for PPMS. Her Aunt and Mother had identical situations, with one exception: she has had the coterie of drugs, they did not. Her progression was much more rapid than theirs. Something to think about. I know that her caretaker is excited, very much so, and supports the Dr. 100%.
Speaking of the Dr., he has also joined the ISNVD, and shortly will attempt to publish the paper, and is definitely going to be at the conference next March. Until then, I am not aware of any plans to hang a CCSVI shingle up, he knows what the science requires, and is doing everything in his power to satisfy that. Documentation up the wazoo as they say, and a heart of gold. Btw I mentioned briefly on Saturday about the new papers, especially r.e. the ventricles, he has seen the same thing in these patients.
That's bout all I got for now, something to chew on...