Feelings About Retenosis After Treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Feelings About Retenosis After Treatment

Postby dania » Mon Apr 15, 2013 4:32 am

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Re: Feelings About Retenosis After Treatment

Postby Cece » Mon Apr 15, 2013 6:32 am

She spoke of feeling clearheaded, having energy, feeling like she got a second chance after MS had stolen so very much from her.

Then, one by one, her symptoms began returning. She began limping again. She lost much of the coordination that she had gained. Once again, she was tired.

Another scenario is when the symptoms partially return, so that some improvements remain and some have faded.

I think there is a lot of hopefulness because the procedure can be repeated and if you've had and lost improvements at least you know that the improvements are possible. But anyone with vein injury is in a particularly tough bind. Or anyone who spent more than they could afford. :(
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Re: Feelings About Retenosis After Treatment

Postby Rosegirl » Tue Apr 16, 2013 3:45 am

This is why I started the thread "When CCSVI fails, try AO and/or the Dentist". Thanks to some information I got from Dr. Michael Arata in California, I learned that treatment by both a dentist and a NUCCA or AO chiropractor is often very helpful, even when multiple CCSVI treatments have not helped at all.

I had three venoplasties that did nothing to help my walking. Each time, the veins (JVs, azygos, renals and iliac) were more than 70% closed. After three tries, it just didn't make sense to try the procedure again.

I was never treated by Dr. Arata, but I contacted him because of his Facebook postings. He responded by Facebook and then called me, and his suggestions have been invaluable.

It is astonishing that Dr. Arata's advice to try an Aqualizer just opened up a whole new avenue of treatment that's getting better results than I got from CCSVI procedures. That little $30 investment rekindled the hope that was rapidly dwindling! His subsequent assistance has pointed me in a whole new direction that is much less expensive and involved no drugs (even with a CCSVI treatment, you get put on drugs for a while to try to prevent restenosis).

Dr. Arata is lobbying for the recognition of dysautonomia (again, see the thread referenced above) even though its treatment won't do much to build his practice. It's such a refreshing change to find a doctor that just wants people to get healthy! The guy even calls people who are not his patients. When's the last time a doctor called to give you more information about your condition and its treatment?

Finally, we have a doctor (and a few of his colleagues) who thinks our health issues must be addressed by a team of professionals working together. What a refreshing change from the neurologists who, if they can't solve your problem try to send you to a shrink because you must be nuts. And he's trying to get the word out to others. What a nice end-run around the medical establishment and drug companies.
Last edited by Rosegirl on Tue Apr 16, 2013 7:09 pm, edited 1 time in total.
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Re: Feelings About Retenosis After Treatment

Postby blossom » Tue Apr 16, 2013 2:36 pm

Rosegirl wrote: It's such a refreshing change to find a doctor that just wants people to get healthy! The guy even calls patients; when's the last time a doctor called to give you more information about your condition and its treatment?

Finally, we have a doctor (and a few of his colleagues) who thinks our health issues must be addressed by a team of professionals working together. What a refreshing change from the neurologists who, if they can't solve your problem try to send you to a shrink because you must be nuts. And he's trying to get the word out to others. What a nice end-run around the medical establishment and drug companies.



yes yes yes!this is long over due. thank you for keeping us updated!
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