Liberation Therapy – Four Years On

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Liberation Therapy – Four Years On

Postby dania » Mon May 06, 2013 5:06 am

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Re: Liberation Therapy – Four Years On

Postby cheerleader » Mon May 06, 2013 8:03 am

That's a blog post from a clinic selling unregulated stem cell therapy with their endovascular treatment.

That's not really CCSVI 4 years later. That's their marketing pitch.
CCSVI 4 years later is the research being done at the ISNVD-- CCSVI in other diseases of neurodegeneration and how CSF and cerebral blood flow are impacted by truncular malformations, skeletal mechanics and endothelial health.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: Liberation Therapy – Four Years On

Postby SLOV8213 » Mon May 06, 2013 9:27 am

http://www.cellmedicinesociety.org/
This is the organization Regentech is regulated by.
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Re: Liberation Therapy – Four Years On

Postby dania » Mon May 06, 2013 11:16 am

"many of these patients have not experienced long-term benefits after surgery. Almost inevitably, restenosis of the neck veins occurs at some point after the venoplasty"
This I believe is true. Many, myself included improved but restenosis occurred. One time I actually felt it happening within a few minutes after being treated. It was so heartbreaking.
I posted this as it echoes how I feel right now. Yes I have CCSVI but in my case it is a symptom not the cause of my condition.
Dr Zamboni's discovery has opened the flood gates to mores theories/thinking outside the box and HOPE for us. We need more doctors like him.
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