Christopher Alkenbrack questions the ethics of the MS Societ

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Christopher Alkenbrack questions the ethics of the MS Societ

Postby erinc14 » Fri May 24, 2013 8:08 am

Christopher Alkenbrack questions the ethics of the MS Society of Canada, Atlantic Division, in promoting government subsidies for MS drugs.

http://www.wireservice.ca/index.php?mod ... &sid=10417
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Re: Christopher Alkenbrack questions the ethics of the MS So

Postby 1eye » Fri May 24, 2013 3:01 pm

Fear mongering is the basis for recommendation of Interferons and Copaxone. There is probably a component of the "MS" syndrome which involves immune cells. We say we don't know what causes that, or many other aspects of the syndrome, like heat sensitivity. But up until Copaxone there was *no* *treatment*. If you don't take so-called DMDs, you are to believe there is, still, in 2013, *no* *treatment*. That is simply not true.

There is a definite self-interest involved in prescribing drugs which costs $30,000 per patient per year and at the same time, are "not associated with a reduction in progression of disability." In other words, they don't prevent it; they don't even slow it down :(

The self-interest is shared in unequal amounts by everyone except the patient: profit. MS neurologists have been said to take kickbacks/bribes for prescribing expensive "MS" drugs, with tens of millions paid to keep it quiet. The same biases against the less expensive PTA treatment are shared by lobbyist, advisers, and executives of public and private insurance companies. It is not hard to imagine them being "on the take" too.

One is forced to estimate the cost to insurance companies based on 50% of patients, because no one can justify costs twice the current amount. So after overnight "conversion" to "Secondary Progressive" these "DMDs" mysteriously become useless, losing all their efficacy at once. At which point we are definitely back to 1970s treatments: none.

That justifies the experimentation and randomized trials on the hopeless sufferers. At least, as human beings, we should allow them to pay for CCSVI treatment in Canada, by ethical professionals, and not force them to travel outside the country or be satisfied with the alternative, which is slow progression, increasing disability, and early death.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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