Funding CCSVI research is/was a waste of valuable time, mone

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Funding CCSVI research is/was a waste of valuable time, mone

Postby Cece » Tue Jun 04, 2013 12:45 pm

"Funding CCSVI research is/was a waste of valuable time, money and intellectual energy"
Multiple Sclerosis Journal, June 2013

the yes response: http://msj.sagepub.com/content/19/7/855.extract
the no response: http://msj.sagepub.com/content/19/7/858.short
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Re: Funding CCSVI research is/was a waste of valuable time,

Postby 1eye » Tue Jun 04, 2013 3:19 pm

I can not read these free, but I suspect I know what they say.

My current observation is that a lot of the work done on "MS" research is funded by donations in memory of the deceased. I believe if one wants to honour those people with meaningful donations, you should not, regardless of requests by well-meaning relatives, donate to hospitals or organizations known to display opposition to, or ignorance of CCSVI research. You should especially not blindly donate to the "MS" Society or a drug company, in memory of a deceased pw"MS". I think it is exactly counter-productive of real progress to the present and future people who have been labelled this way, and if further effort is not made, will die this way.

Please direct your donations into CCSVI research. Please elaborate on this to your loved ones. Money is being wasted.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Funding CCSVI research is/was a waste of valuable time,

Postby civickiller » Sat Jun 08, 2013 2:48 pm

i believe it is a waste of time for now maybe after they look at csf flow and all causes of it being obstructed

like when i did Upper Cervical Chiropractics, I felt I didnt have MS anymore and he only just corrected my misaligned C1 Atlas which i assume got my csf flowing but we have to go back further as to what causes the C1 misalignment like whiplash type things, jaw misalignment, and/or cranial misalignment
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Re: Funding CCSVI research is/was a waste of valuable time,

Postby 1eye » Sun Jun 09, 2013 3:26 pm

I will never feel healthy and I have already apologized to my kids for what has been left to them.

I'm sure, that what will make someone who is not me, feel like they
'don't have "MS" anymore'
may possibly help me somewhat, too. But CCSVI research is not a waste of money.

It is the only sensible way of doing 'MS' research. In honour of those who have fallen to it, there is no better way.

I took my compression stockings and CVI-suffering feet on a trike ride today for 10 or so KM. I met up with and visited a fellow SP"MS" person, her grandchildren, husband and daughter. I would not have been able to do that, if I had not had the CCSVI procedure three years ago. Canadians are so paranoid, the doctors, technicians and nurses who operate Doppler ultrasound equipment every day all day, don't want to go near my neck, even today. Good luck with your CSF.

I have begun to realize that many things my father had before he died are my likely fate, too. Heart attack, stroke, organs shutting down. Similar, but different. And I think he knew, too.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Funding CCSVI research is/was a waste of valuable time,

Postby centenarian100 » Tue Jun 11, 2013 3:56 pm

I agree with the "no" response overall.

The "yes" response makes some good points, but the buffalo study is probably the highest quality study which did who an association between MS and CCSVI.
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