Dr. Rae-Grant has been working with Dr. Fox at the Cleveland Clinic for a couple of years on their CCSVI studies...they found intraluminal malformations, new valves in autopsied jugular veins of pwMS, and flow irregularities using multi-modal techniques. These researchers know there is something there....but they do not have the means or expertise to deal with venous malformations. Nor do they understand what treatment might provide. It was pretty brave of Dr. Rae-Grant to admit this at an MS conference. Dr. Steinman pretty much did the same thing on my FB page yesterday. He's not a venous specialist...his quote, "I'm not a surgeon. I'm doing what I can with my expertise."
So, CCSVI exists, but neurologists don't understand it. And that took four years and millions of dollars for them to discover. When Drs. Dake, Siskin, Zamboni, Sclafani, Hubbard and a host of others have been prepared to work with them and show them perfusion and blood flow changes after venoplasty.
Agree, 1eye...it's the wrong side of history, and while they fiddle, more lives are being burned up.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09