just to confirm for the umpteenth time

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

just to confirm for the umpteenth time

Postby erinc14 » Sun Jul 07, 2013 9:39 am

I got stents 2+ years ago . there is no risk now of them becoming dislodged ?
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Re: just to confirm for the umpteenth time

Postby cheerleader » Sun Jul 07, 2013 4:34 pm

Hi erin-
we don't really know. Wish we did, but we don't.

While uncommon, stent migration is potentially more dangerous when the stent is placed in the venous system (as with CCSVI treatment), than in the arterial system. In the venous system, blood is moving toward the heart, and the diameter of the vessels generally widen toward the heart. As a result, a freely migrating stent, particularly one initially placed in a location that has a relatively direct path toward the heart (e.g. the jugular veins), may actually travel down and into the outer chambers of the heart. Such a migration could result in the need for emergency procedures to remove or re-place the stent.

At present, the risk of stent migration cannot be quantified, as there is no study aggregating the number of venous stents placed and the number of stent migrations.


http://www.ccsvi.org/index.php/advanced ... ment-risks

In this instance, a massage caused a stent to migrate after 3 years.
http://www.ncbi.nlm.nih.gov/pubmed/18503913

best bet --live a heart healthy life, eat a whole food diet, keep moving, avoid massages or stress to the stented area and if possible, have follow up appointments with the IR who placed your stent, to make sure all looks good. Jeff's past 4 years, still doing well.
hope this info helps,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: just to confirm for the umpteenth time

Postby erinc14 » Mon Jul 08, 2013 7:50 am

I wasn't expecting that. :sad:
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Re: just to confirm for the umpteenth time

Postby Rogan » Tue Jul 09, 2013 9:33 am

cheerleader wrote:
In this instance, a massage caused a stent to migrate after 3 years.
http://www.ncbi.nlm.nih.gov/pubmed/18503913



This is an interesting piece of research. Obviously a patient with painful legs was getting a massage to help these symptoms. If you search shiatsu on TisMS you will yield so many results of MS patients getting benefit from massage.

For me it is further proof that circulation issues play a large role in MS and that massage can really get circulation moving, if it was strong enough to dislodge a stent.

Perhaps it would be advisable to inform your Massage Therapist the location of your stent?
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Re: just to confirm for the umpteenth time

Postby 1eye » Tue Jul 09, 2013 1:23 pm

I answered my own question by reading the abstract...

Q. Was the massage directly to the stented area, or was it, as you say ""circulation moving?"
A. It was not even the CCSVI procedure, but deep thigh massage directly to the stented area. Veins are drains. They all drain to the heart.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: just to confirm for the umpteenth time

Postby Cece » Tue Jul 09, 2013 6:39 pm

Shoot. I thought the risk of migration was over after the stent had endothelized into the vein wall at about a month or so post-treatment.
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Re: just to confirm for the umpteenth time

Postby CureIous » Tue Jul 09, 2013 8:23 pm

No one can tell you much of anything. Aint nothing but guessing. I'm a few weeks shy of having 4 of them for four years and lose no sleep over it. They endothelialized, every scan has shown them all snugged up where they're supposed to be surrounded by a layer of skin. Stopped worrying about it after about the second year. I guess we are the scientific study.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Re: just to confirm for the umpteenth time

Postby erinc14 » Wed Jul 10, 2013 7:31 am

CureIous wrote:No one can tell you much of anything. Aint nothing but guessing. I'm a few weeks shy of having 4 of them for four years and lose no sleep over it. They endothelialized, every scan has shown them all snugged up where they're supposed to be surrounded by a layer of skin. Stopped worrying about it after about the second year. I guess we are the scientific study.



thanks :!:
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Re: just to confirm for the umpteenth time

Postby Cece » Wed Jul 10, 2013 3:46 pm

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic21197.html
Also I contacted Euromedic expressing my concerns and they sent this reply.

“Hello,

Your stents are: Wallstent 16x60mm and Wallstent 16x20mm - both in left jugular vein. The material of the stent stays for lifetime. Nothing should happen with it in mechanical way.
Another issue is possibility of thrombosis or hyperplasia, therefore you need to remember about doppler check-ups at least every 6 months.

Kind regards,

Marta Cyba
Euromedic Poland”

http://link.springer.com/article/10.100 ... 002-1953-6
Shortening and Migration of Wallstents after Stenting of Central Venous Stenoses in Hemodialysis Patients

Purpose: To report our results for the placement of central venous stents in patients undergoing hemodialysis. Methods: Ten Wallstents (Schneider, Bülach, Switzerland) were placed in 10 patients with shunt thrombosis, shunt dysfunction or arm swelling associated with central vein stenosis or occlusion. Technical success, patency and complications were evaluated. Results: Stent deployment was successful in all cases. In seven cases (70%) there was significant delayed stent shortening. In two of these cases there was also stent migration. All these cases required additional stents. Primary patency rates at 6, 12 and 24 months were 66%, 25% and 0. Twenty-three additional procedures (percutaneous transluminal angioplasty or stenting) were required to achieve secondary patency rates at 6, 12 and 24 months of 100%, 75% and 57%. Conclusion: Stent placement in the central veins of dialysis patients has a high technical success rate resulting in symptomatic relief and preservation of access. Repeat interventions are required to maintain patency. Significant delayed shortening of the Wallstent occurred in 70% of patients which may have affected the patency rates. Strategies are suggested to avoid this problem.

Wallstents were used in Poland on ccsvi patients, I don't know if they were used elsewhere? Here's an article on Wallstents placed in central veins (could be jugulars or nearby veins) with delayed stent shortening in 70% and stent migration in 20%. Stent migration could be by a mere mm or two, and it's not clear if it was delayed stent migration or just delayed stent shortening. Maybe reading the full article would explain? I guess stent shortening would be the cause of migration? But I tend to agree with Cure. If stents are in place, they're in place, and nothing can be done about it now. I think the IRs oversize the stents by 10% or so which makes migration less likely even before they get incorporated into the wall of the vein.

Do you have access to an IR who could do an ultrasound to check on your stents?
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Re: just to confirm for the umpteenth time

Postby MrSuccess » Wed Jul 10, 2013 3:57 pm

the possibility of migrating stents have always been the major concern. Dr.Zamboni stressed this from day ONE in CCSVI. And advised pwMS not to have them.

Stents are a great idea . I believe they will contribute to pwMS having great results in treating CCSVI .

HOWEVER .

Not stents in use today. DISSOLVABLE stents may be the way to go IN THE FUTURE.

Safer. Once the vein is "trained" to stay open.... the stents absorb and disappear.

Invent this ....... and you will a rich and famous hero.


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