Mayo clinic is working at it

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Mayo clinic is working at it

Postby frodo » Mon Jul 08, 2013 6:27 am

This article comes from Mayo clinic, which I would say are the number 1 in MS research (with things in their CV like the discovery of AQP4 in NMO)

Spiral vein graft for internal jugular bypass in a patient with multiple sclerosis and suspected chronic cerebrospinal venous insufficiency

http://www.ncbi.nlm.nih.gov/pubmed/23809937

Not only they report that the patient symptoms dissapeared with venoplasty, but they also report that the vein reoccluded twice and the symptoms came back every single time.
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Re: Mayo clinic is working at it

Postby 1eye » Mon Jul 08, 2013 8:00 am

So now that the spiral graft has also failed, what do they propose should be done?
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Re: Mayo clinic is working at it

Postby dania » Mon Jul 08, 2013 9:38 am

I think this was done in 2011, Mike House was the patient.
http://msmikejuices.blogspot.ca/search? ... results=34
He had it done twice and improved initially. Read his blog.
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Re: Mayo clinic is working at it

Postby dania » Mon Jul 08, 2013 9:42 am

Had it done 3 times, vein bypass. Initial improvements, but failed within a month. My veins are not MY problem as I discovered but CSF is pinched by a neck bone which is causing CCSVI.
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Re: Mayo clinic is working at it

Postby 1eye » Mon Jul 08, 2013 10:01 am

dania wrote:I think this was done in 2011, Mike House was the patient.
http://msmikejuices.blogspot.ca/search? ... results=34
He had it done twice and improved initially. Read his blog.

Seemed to be doing pretty well end of last year. Looks like the decision not to touch the collateral was maybe a good one. Keeping fingers crossed.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Mayo clinic is working at it

Postby Cece » Mon Jul 08, 2013 10:29 am

No updates in a year at Mike's blog? Hope he's holding steady.
Really glad to see Mayo clinic publishing on it.
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