Salvatore Sclafani, a Brooklyn-based interventional radiologist, agrees. “We need to put MS on the back burner and focus on the symptoms,” says Sclafani, who has performed some 500 CCSVI treatments. “It’s about whether venous outflow obstructions can result in neurological symptoms. It is about whether opening venous outflow improves some clinical manifestations often seen in MS.” CCSVI has been “politicized, discredited, misunderstood, denigrated, slandered and rejected out of hand,” he says. He would like to see a movement away from whether CCSVI causes MS and toward a focus on the most effective treatment techniques and an understanding of which patients are most likely to benefit. “Failure to do so would do an injustice to those who have venous obstructions of the cerebro-spinal venous outflow,” he says.
from the article wrote:Tethering CCSVI to MS created an either-or equation. Either CCSVI caused MS or it didn’t. Either CCSVI was found in people with MS exclusively or it wasn’t. Either CCSVI could cure MS or it couldn’t. Any potential benefit in new insight into the understudied role of the venous system in neurodegeneration was eclipsed. Caught in the middle were people diagnosed with MS, a widely heterogeneous condition, with no cure.
Cece wrote:But if it weren't for the tethering of CCSVI to MS, I would not have know to go get that first doppler done. I knew to expect jugular obstructions because that's what was being found in people with MS. The association between CCSVI and MS is provocative but, yes, there is much to learn about CCSVI in its own right and treatment techniques. What I want most is for the vascular experts to get in the ring (annulus) (no, the wrestling ring) because the vascular experts are the ones who can treat this, they are the ones who understand blood flow, they are the ones who can look at an image and judge based on that image. The vascular experts have so much to contribute and it is to our detriment if they allow neurologists to dominate the discussion.
Cece wrote:We don't even know whether or not CCSVI is exclusive to MS or whether or not it causes MS
MarkW wrote: CCSVI has been found in people who don't have MS...CCSVI alone does not cause MS.
Users browsing this forum: No registered users