Soon

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Soon

Postby cervocuit » Thu Sep 26, 2013 3:25 am

Is this serious ???
http://www.youtube.com/watch?v=xskSiTe_g_A
It’s a movie produced by Zamboni’s association « CCSVI nella sclerosi multipla » and played by volonteers of the association.
How can pianos and violons help science ?
Ridiculous...
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Re: Soon

Postby bifrostlake » Thu Sep 26, 2013 5:04 am

Desperation.
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Re: Soon

Postby 1eye » Thu Sep 26, 2013 10:23 am

I'm the one who should be desperate. I'll not live to see any more improvement in this. Not because of IRs and vascular doctors, but for absolute certain I'll be gone sooner because of the interventions of those who have given the science of neurology a bad name. For many of them it was not intentional. When people receive half a million of personal income for enrolling 100 patients in drug trials shows how quickly things can get out of hand.

I have seen the footage of Annette Funicello. I watched a friend die without any remissions. I have no illusions about the road ahead. I don't see how I'll be able to get on my recumbent tricycle next year. For some reason, though, I feel no desperation. For some reason, I have heard the word desperation mostly from healthy people, referring to those they think are less well-off. They think we have no hope. They are just jealous. And perhaps angry, at all the hope that seems to be happening lately.

The word desperation is related to the word despair. I don't indulge, myself. Use of the word desperation in some arguments is a tell, for me. It may bother some people seeing others spend money on 'violins and pianos'. It's no skin off my nose. I am not offended, as I am about some other uses of public media I have seen. I can think of better things to do than worry about a short film with decent music (if a little on the slow side).

'you ain't gettin' no younger .' -- Desperado, Glenn Frey and Don Henley

Spain created the Camino Real from Mexico to Santa Fe, New Mexico, in 1598. Camino Real literally means “Royal Road”. As such the road is protected by garrisons at intervals along the road. Spanish law levied a toll to travelers on the Camino Real in order to pay for these soldiers. The soldiers would stop the travelers and demand the toll be paid for them to continue on. In spanish “to stop” is “parar”. And as above “desparado” is a person that was not stopped. According to their oral history, the term desparado, described travelers that did not want to pay a toll and circled, off the road, around the military posts.
--Urban Dictionary
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Soon

Postby Cece » Thu Sep 26, 2013 1:09 pm

Ah 1eye now I can picture you in a one-eyed desperado bandito mask, peddling that recumbent trike down the royal road...

This war does not need to be fought with words or with violins and pianos, which is a shame, because there are some excellent words and some excellent musicians on our side. As long as there are the valves and obstructions in jugular and azygous veins of which I have seen images, then I expect the treatment of those obstructions to be standard care in the not-so-distant (and not nearly soon enough) future.
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