Big day this week - finally having CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Big day this week - finally having CCSVI

Postby lifeisgood » Sun Oct 06, 2013 12:57 pm

Hi all-

My husband has had RRMS for over 25 years. He is still able to work and if you looked at him, you really couldn't tell that he even has MS. I am the one who visits this sight and surfs the net to trying and keep up with what is new in the MS world.

I remember sitting in front of my computer back in 2009 when I first watched the lengthy video about Dr. Zamboni and his discovery. I sat....and watched... as I got goosebumps and had tears running down my cheeks and what this could possible mean for those suffering with MS.

We have watched from the sidelines as people traveled all over the world to have the procedure. We watched and waiting patiently and tried learned more.

My husband has finally decided not to wait any longer and to have it done this week at Rush Hospital in Chicago. We are nervous, excited and yet cautious. I can't believe it is actually going to happen and he will have his chance. It has come full circle for us. Say a prayer for him and the doctor if you have a minute!

:)
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Re: Big day this week - finally having CCSVI

Postby Cece » Sun Oct 06, 2013 1:25 pm

Tell us how it goes!! He has all my best wishes.
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Re: Big day this week - finally having CCSVI

Postby lifeisgood » Sun Oct 06, 2013 4:05 pm

Thanks. I feel like I know you, too!
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Re: Big day this week - finally having CCSVI

Postby 1eye » Sun Oct 06, 2013 5:17 pm

Hope all goes very well.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Big day this week - finally having CCSVI

Postby NHE » Mon Oct 07, 2013 3:14 am

lifeisgood wrote:My husband has finally decided not to wait any longer and to have it done this week at Rush Hospital in Chicago. We are nervous, excited and yet cautious. I can't believe it is actually going to happen and he will have his chance. It has come full circle for us. Say a prayer for him and the doctor if you have a minute!

Which doctor will he be seeing? Do they use IVUS?
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Re: Big day this week - finally having CCSVI

Postby lifeisgood » Mon Oct 07, 2013 5:35 am

Dr Bulent Arslan and I believe so.
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Re: Big day this week - finally having CCSVI

Postby Cece » Mon Oct 07, 2013 8:18 am

I've heard a lot of positive reports about Dr. Arslan but he was on record at ISNVD in 2012 saying that he does not use IVUS.
chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic19297.html
Dr. Sclafani: IVUS needed to detect each valve. Dr. Arslan: Right equipment makes the difference; IVUS not needed
I wonder what he means by right equipment.
The IR in Chicago who treats CCSVI and uses IVUS is Dr. Ferral: http://www.northshore.org/apps/findadoc ... x?pid=9120

The good thing about Dr. Arslan is that he's done a lot of procedures. I would consider him experienced.
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Re: Big day this week - finally having CCSVI

Postby Cece » Wed Oct 09, 2013 1:43 pm

lifeisgood wrote:My husband has finally decided not to wait any longer and to have it done this week at Rush Hospital in Chicago. We are nervous, excited and yet cautious. I can't believe it is actually going to happen and he will have his chance. It has come full circle for us. Say a prayer for him and the doctor if you have a minute!

Midweek wishes for a safe procedure and quick recovery and improvements if possible!
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