cheerleader wrote:Great job, Cure---bringing Dr. Thibault on board has been huge.
No, unfortunately I cant claim any responsibility for Dr Thibault, just maybe Warren (Sonographer) and possibly their linking up. From memory, someone here on ThisIsMS had a golf connection with Paul.
cheerleader wrote:Wondering how much time elapsed between your tests in Australia and the re-treatment with Dr. Sclafani?
Dont have the dates, so it would all be a guess. And my random guess would be that I was last treated under 12 months before the scan in Melbourne, Aus. Then around 12 months after the scan, I was treated by Dr Sclafani.
Actually, just found the email trail for some of the above. My last treatment in Aus occurred on 2 Jan 2011, and my treatment with DR Sclafani occurred around 28 Aug 2011. The ultrasound at Vascular One (by Warren Lewis) would of occurred somewhere between those two dates. So the gaps would of been shorter at around 6 months.
cheerleader wrote:Were the areas treated doppler accessible? Or was it renal/azygous issues?
All my treatments, both the two here in Australia and also the one by Dr Scalafani have never found any treatable issues with veins in my torso such as my Azygous or renal vein. Feel free to ask any questions regarding my treatments, because as a non-responder, I think its cases like me that could further any understanding the most. If they could solve why 70+ % of people are not helped by Interferons (not really the case as its an aggregated figure) we would have a damn good treatment option. Even if the side effects suck so much.
cheerleader wrote:Also wondering how that trip was for you. I know that's a pretty long flight from Sydney to NYC. I'm thinking stress, hydration, air pressure--and how that all effects the veins.
To be honest, I am not sure it had affected me, however, I did notice that when I saw Dr Sclafrani I would of appeared more disabled in that my walking was worse. However, from memory it basically returned to "normal" when I got back. I find that not moving makes my stiffness worse when I do try to move, so maybe the long flight in "coach" didn't help. I have done a few flights with MS, including two from AUS to UK/Europe and then back with a single stopover for one week. I can't say they scare me in regards to their effects on my MS. I do use Modafinil for Jet-Lag quite successfully.