A poor start on research, a fascination with replicating Zamboni's work on ultrasound, and a general, out of proportion, negativity to the concepts regarding the role of ccsvi as a cause of MS rather than as a method of symptom relief have distracted from good research partnerships.
"MS" is the n-word of the medical world.
I hope I will be forgiven my negativity, whether it is out-of-proportion or not. I have some deep connection to this topic, and I am subject to many maddening influences.
I am tired of seeing ads for drugs. I am particularly tired of rebif, avonex, and betaseron ads: drugs which do nothing. There is even a drug now for those who might have been stupid or unlucky or both, enough to get PML from Tysabri or one of the newer "DMD"s.
I am tired of being told I am not going to get better. I already have, and continue to get better. Drug and insurance companies will not help, supposedly because I will not benefit. From anything. Even from a specialist to look at my Xrays of my broken collar bone. Besides, if they treated me, and something helped, the medical world would be short one potential guinea pig. Not worth treating.
I am tired of "MS" patients being told to wait. Being ignored. Being told, like a speech from a Sunday-morning televangelist, that help is on the way, that a cure is just around the corner, that all I need to do is donate to the Church of "MS". Tired of "MS" patients being warehoused, tortured and killed by drug-experimenters looking for nothing but the next blockbuster drug payday and stock-market killing. Tired of it being called informed consent when it is really disinformed non-consent.
walking disability is complicated because spastic paralysis and paresis, imbalance, and fixed foot drop, together with a generally unfit physique impair ability to improve walking in many patients. Improvements in ambulation often take a very long time but do occur.
Unfortunately dead neurons cannot be resurrected. However dysfunctional neurons can be made to work better in my belief.
Vestigial balance problems can be treated. The device is inside every phone, camera, and computer. It is connected to another device that can communicate via electrical impulses with the wearer's tongue. By now, it can probably be integrated into a pair of glasses.
Proprioception and balance can be retrained, with probably $5.00 worth of hardware. Why is this not offered to people with "MS"?
Parkinson's, ALS? Because it is not a drug, so not enough money can be made. Foot drop is an ailment that can be retrained as well without the use of the paralyzing braces and lifts.
It is known that
and thatpulsatility index (PI) from pedal arteries by using CW Doppler  below cut off value of 5 [is] a confirmatory evidence of autonomic neuropathy.
This must be a large part of the problem in people who cannot walk. Does anyone care enough to treat this without drugs that cost $30,000 yearly, and must be taken for life?lower limb hyperperfusion owing to arterial neuropathy in various degrees produce venous stasis and is also responsible for some venous abnormalities.
Dysfunctional neurons can be retrained. Does anyone care to do it? Not neurologists, when they do fine, thank you, using standard "DMD"s lifetime prescriptions, and clinical trials. Why rock the boat?
I have improved my condition using home electro-therapy, to the point where I no longer get venous skin ulcers. This is not offered to me or to diabetics, because of missing monetization, the biggest hole in anyone's health-care system.
I traveled 9 km by recumbent tricycle today, on a path which I last traveled the day I retired my bicycle 10 years ago.
But I will never get better.