New study: 83% of 552 pwMS have CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

New study: 83% of 552 pwMS have CCSVI

Postby cheerleader » Wed Dec 03, 2014 9:55 am

Using Zamboni's doppler technology---and including intrinsic and external vein compression--
"Balloon and go" is not the best treatment protocol. Patients must be individually assessed and treated. Most have a combo platter of internal and external vein issues. Jeff had external compression, which is why he was stented. Other vascular doctors use vein grafts, release surgery on muscles, atlas adjustments, and other methods to deal with external compression.
cheer


AIM: The aim of the present study was to determine a Echo-Color-Doppler (ECD) data analysis algorithm for patients with multiple sclerosis (MS) affected by chronic cerebrospinal venous insufficiency (CCSVI) by using a morphological-hemodynamic-map (MEM-net). The CCSVI is a new nosological vascular pattern that has been recently founded also in MS patients.
METHODS: We investigated 552 MS patients (mean age: 43±10 years) by Echo-Color-Doppler (ECD, MyLab Vinco System, Esaote), out of which 333 females (60%) and 219 males (40%). The identification of CCSVI by ECD examination was obtained following Zamboni’s criteria. The ECD data were analysed by MEM-net software (http://www.mem-net.it), which made possible an on-line diagnosis of positive (83%) or negative (17%) CCSVI patients.
RESULTS: We classified CCSVI in three different types by identifying a new hemodynamic parameter the “venous compression”. Type-1 with intravenous block (17%), type-2 with extravenous compression (4%) and type-3 with both conditions (79%).
CONCLUSION: The results provide the hemodynamic basis for a new CCSVI classification, which may lead to a better optimization of individual treatment.
http://www.minervamedica.it/en/journals ... 14N03A0107
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: New study: 83% of 552 pwMS have CCSVI

Postby 1eye » Wed Dec 03, 2014 4:39 pm

So, now, we have a number of camps in which people may hang their hats:

1. CCSVI is present in a large number of pw"MS", and causes or is caused by or they are both caused by "MS".

2. CCSVI is a normal phenomenon which does not cause or indicate any problems.

3. CCSVI does not exist because we would have heard of it by now, and we haven't.

4. CCSVI does not exist because the experts and many negative studies say it doesn't.

5. CCSVI doesn't exist because pw"MS" are just desperate.

6. Nobody who believes CCSVI exists is worth listening to because they are Italian or Italian-tolerant.


You pays yer money and you takes yer choice.
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Re: New study: 83% of 552 pwMS have CCSVI

Postby cheerleader » Wed Dec 03, 2014 6:37 pm

The study, like others using the full Zamboni protocol (BNAC included), is finding CCSVI in a large part of the MS population.

This study is including external compression of veins, and finding that this is an important factor in diagnosing and treating patients. As Dr. Dake and Cooke told us six years ago, we were at the beginning of CCSVI treatment and it would change as more was learned. The atlas adjustments, vein grafts, stents, IVUS implimentation, and other changes in treatment are all part of this evolution. But that doesn't mean it's wrong or CCSVI doesn't exist...it means the science is evolving.

EAE has had 70 years, and as many "camps"...let's give CCSVI research a bit more time, shall we :)
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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: New study: 83% of 552 pwMS have CCSVI

Postby Robnl » Thu Dec 04, 2014 12:05 am

Agree :-D
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Re: New study: 83% of 552 pwMS have CCSVI

Postby ThisIsMA » Fri Dec 05, 2014 12:13 am

Wow, that is really exciting news! And I see Dr. Zamboni isn't listed as one of the study's authors, which is great from the perspective of having others independently replicate or verify his original study findings.

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DX 6-09 RRMS, now SPMS
Still work, still walk, but not very far.
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Re: New study: 83% of 552 pwMS have CCSVI

Postby Flashover81 » Sun Dec 07, 2014 6:54 am

I agree, lets not be closed minded anymore. The majority of Humans seem tolerant with all the change going on in the world except the Neurological Community. Hopefully that is changing as well "I have HOPE". Maybe the Neurological closed mindless will change when the Old Guard goes out and hopefully a new Guard of Neurologists will be more receptive with change like the rest of us are?
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Re: New study: 83% of 552 pwMS have CCSVI

Postby 1eye » Sun Dec 07, 2014 3:23 pm

It's a gold mine the neuros are protecting. However the end may come, (see MSRV), and there might be relief from the pocket-lining. They can't put the retrovirus back in the bottle, and once it's gone, it's gone. Hope springs.

Meanwhile one can still revise diet, track nutrients and vitamins, get CCSVI procedures done, when warranted, and try to stay positive. And learn a new language, a new instrument, sudoku, programming, something to keep brain cells busy. Currently I am trying to have a solar collector put on my roof.
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Re: New study: 83% of 552 pwMS have CCSVI

Postby Luvsadonut » Tue Dec 09, 2014 4:20 am

Most have a combo platter of internal and external vein issues.

What would be typical external vein issues?
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Re: New study: 83% of 552 pwMS have CCSVI

Postby cheerleader » Tue Dec 09, 2014 5:06 pm

Luvsadonut wrote:What would be typical external vein issues?


External vein issues include entrapment of the jugular vein by the omohyoid muscle
http://www.hindawi.com/journals/cris/2012/293568/
http://phl.sagepub.com/content/29/9/632.abstract

or inpingement by the atlas or styloid process
http://www.pubfacts.com/detail/21866063 ... ase-report.

Dr. Zamboni has been looking at the issues with other vascular surgeons, and NUCCA at Atlas adjustment doctors like Dr. Scott Rosa are investingating upper cervical adjustments.
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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: New study: 83% of 552 pwMS have CCSVI

Postby Luvsadonut » Wed Dec 10, 2014 2:49 am

Thanks for the info cheer.
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Re: New study: 83% of 552 pwMS have CCSVI

Postby frodo » Mon Dec 15, 2014 4:25 am

1eye wrote:So, now, we have a number of camps in which people may hang their hats:

1. CCSVI is present in a large number of pw"MS", and causes or is caused by or they are both caused by "MS".

2. CCSVI is a normal phenomenon which does not cause or indicate any problems.



These two first premises are perfectly possible and compatible with observations. CCSVI can be normal, but they can behave more seriously when present in genetically-predisposed people.
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Re: New study: 83% of 552 pwMS have CCSVI

Postby 1eye » Tue Dec 16, 2014 3:19 pm

I am not disagreeing as to whether "normal" people have CCSVI; as we know it's associated with at least one chronic condition: "MS".

There are probably more:

Potential involvement of the extracranial venous system in central nervous system disorders and aging.
Zivadinov R, Chung CP.
BMC Med. 2013 Dec 17;11:260. doi: 10.1186/1741-7015-11-260. Review.
PMID: 24344742

Jugular venous reflux and white matter abnormalities in Alzheimer's disease: a pilot study.
Chung CP, Beggs C, Wang PN, Bergsland N, Shepherd S, Cheng CY, Ramasamy DP, Dwyer MG, Hu HH, Zivadinov R.
J Alzheimers Dis. 2014;39(3):601-9. doi: 10.3233/JAD-131112.
PMID: 24217278

Jugular venous reflux and brain parenchyma volumes in elderly patients with mild cognitive impairment and Alzheimer's disease.
Beggs C, Chung CP, Bergsland N, Wang PN, Shepherd S, Cheng CY, Dwyer MG, Hu HH, Zivadinov R.
BMC Neurol. 2013 Oct 31;13:157. doi: 10.1186/1471-2377-13-157.
PMID: 24176095 Free PMC Article

Internal jugular venous abnormalities in transient monocular blindness.
Cheng CY, Chang FC, Chao AC, Chung CP, Hu HH.
BMC Neurol. 2013 Jul 22;13:94. doi: 10.1186/1471-2377-13-94.
PMID: 23876171
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Re: New study: 83% of 552 pwMS have CCSVI

Postby Donnchadh » Thu Dec 25, 2014 8:59 am

cheerleader wrote:
Luvsadonut wrote:What would be typical external vein issues?


External vein issues include entrapment of the jugular vein by the omohyoid muscle
http://www.hindawi.com/journals/cris/2012/293568/
http://phl.sagepub.com/content/29/9/632.abstract

or inpingement by the atlas or styloid process
http://www.pubfacts.com/detail/21866063 ... ase-report.

Dr. Zamboni has been looking at the issues with other vascular surgeons, and NUCCA at Atlas adjustment doctors like Dr. Scott Rosa are investigating upper cervical adjustments.
cheer


In my case, there were large bone spurs growing from the wings of the C1 atlas vertebrae. The left side was especially bad; completely compressing the internal jugular vein and pinching the vagus nerve as well.

These bone spurs were removed in two separate surgeries spaced six months apart. There was some immediate symptom relief-the terrible pins and needles pain was gone from my hands.

Donnchadh
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