ElliotB wrote:"There are some highly effective treatments for relapsing MS"
And what are they???
Cece wrote:A good community is a valuable thing. I have met more than 3 TiMS members in the flesh! And it was wonderful to talk in person to the people I'd been talking to online. I hope the general forum gets restored to whatever you can make it be. I hope more positive CCSVI news comes in at ISNVD because this study, even though we had low expectations, is still disheartening. I am very personally grateful to Cheerleader for her role in putting things together back in 2009 and for her continued advocacy between then and now.
10years, thanks. It does seem like the 'death knell' for CCSVI keeps being asserted and yet it rightly continues to be researched. But Bromley is no troll. I googled his name because it is familiar but I couldn't place him. I found a thread with Wheelchair Kamikaze weighing in that Bromley's posts were highly informative and useful and that he shouldn't leave the site after some kick-up back in 2006, long before I got here. I value Marc's opinion on other people so Bromley is good by my accounts. He's probably right that the forum as a whole has gone through changes over the years. The internet itself has gone through changes! I think it's a kick to still be in touch with people I befriended here in 2010. And I like that we are still discussing CCSVI because I think there is still much to discuss.
ElliotB wrote:"HSCT, alemtuzumab, rituximab, ocrelizumab, ofatumumab, daclizumab, cyclophosphamide, novantrone, natalizumab"
None of these are proven to work. I know we all really want them/something to really work. But...
flipflopper wrote:I will recommend this popular article to everyone who has not read it. The title is self-explanatory "Why Most Published Research Findings Are False". http://journals.plos.org/plosmedicine/a ... ed.0020124 .
centenarian100 wrote:HSCT, alemtuzumab, rituximab, ocrelizumab, ofatumumab, daclizumab, cyclophosphamide, novantrone, natalizumab
However, all have significant risk and no clear evidence in non-relapsing progressive multiple sclerosis. Also, none of these reverse long standing existing disability in multiple sclerosis, so it depends what is meant by "highly effective." They are highly effective in preventing relapses and new MRI lesions.
NHE wrote:Calling novantrone effective is stretching reality into "alternative facts."
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