Is Dr. Sclafani still around?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Is Dr. Sclafani still around?

Postby vesta » Fri Dec 29, 2017 10:31 am

Jjpink wrote:Violin, can you please let us know how your experience was??? Please. Now I really don't know what to do.


Have you requested an opinion/analysis from Dr. Sclafani on your particular situation?

I will post here my Seven Steps to MS Health:

MY SEVEN STEPS TO MULTIPLE SCLEROSIS HEALTH

1. DE-TOXIFY

After a lifetime of eating badly, ingesting antibiotics and other toxic chemicals, exposure to heavy metals and nuclear fallout, toxins build up in the body and need to be flushed out in order to maximize the benefit of ideal, personalized foods and supplements. Check out DETOXIFY on the Internet to find your preferred protocol. One example:
want2bike (From Thisisms.com)suggested
“Dr. Hyman explains his 10 day detox diet. https://www.youtube.com/watch?v=kgcGlei_JLowant2bike

I had the advice/assistance of a kinesiologist/nutritionist and won’t myself suggest a detox protocol. Dr. Hyman maintains that a simple diet change over 10 days will do the trick (or at least be a beginning) which is something anyone can try. So why not? (It takes 5 days to withdraw from a food allergy).

See also my Detoxification and Supplements post.

2. OPTIMAL ANTI-INFLAMMATORY NUTRITION.

See C-Reactive Protein – Key to MS Diet

Diet is critical to many diseases, particularly « auto-immune ». However, areas of vulnerability differ. For MSers it’s the vascular system linked to the central nervous system that matters. Diet impacts production of C-Reactive Protein (CRP) – which in turn impacts the endothelium of the vascular system. Secondly, proper diet acts to reduce cellular inflammation thereby preventing spasms in the veins’ smooth muscle layer. It follows that for MSers proper diet facilitates blood/cerebrospinal fluid circulation. For those without a serious veinous obstruction, diet/supplements alone may suffice to heal

3. SUPPLEMENTS

I have been taking a customized Standard Process Supplement Protocol (with additions) recommended by my Kinesiologist/Nutritionist since 1984 so I won’t suggest a general plan.
As to Diet, consider my post Paleo-Macro-biotic diet.

As a general protocol consult Matt Embry’s
http://www.mshope.com. (food, supplements, exercise, CCSVI).

4. ENHANCE BLOOD/CEREBRO-SPINAL FLUID CIRCULATION - CCSVI

Simple blood/cerebrospinal fluid circulation therapies such as massage, acupuncture, neuro-muscular electrical stimulation, osteopathy, or swimming may suffice. See Acupuncture blog (which includes Tens Self Acupressure) I do daily Tens Self Acupressure treatments to stay afloat and try to get an acupuncture or osteopathic treatment once a month. A serious venous blockage may require ANGIOPLASTY (PTA). Prior to taking that decision, one might consult a specialist in skeletal disorders (e.g. Chiropractors or Osteopaths) to be certain a bone, muscle, tendon etc is not obstructing the vein. Best diagnostic tool – FONAR Upright Cine (as in cinema) MRI.
Professor Zamboni’s recent "Brave Dreams" trial has cast in doubt the effectiveness of PTA (Angioplasty) except in a subset of MS patients which presumably discredits the CCSVI theory. Actually I would say it only discredits a limited solution to a complicated problem. The Vascular Connection to MS is real, but the origins of obstructions are as varied as their "cure". Promoting blood flow throughout the Central Nervous System requires attention to the individual’s body structure as well as the physiology.

5. SUNLIGHT OR UV RAYS on the skin at least 15 minutes daily to release Nitric Oxide essential to vascular health and blood circulation.

6. Homeopathic remedy Oscillococcinum by Boiron to head off a virus. IT WORKS (unless perhaps one is taking a toxic drug. Anti-biotics annul it for me.)

7. EXERCISE BUILD UP PROGRESSIVELY (Consulting a Physical Therapist may help.)
Be moderate in terms of your current condition. Don’t do so much that you throw yourself into an « attack ». (Early on I stressed myself with a « performance » mentality.) Now I walk a minimum number of steps per day and swim when I can.

Be creative. Tif of ThisisMS.com has recovered function with Neuromuscular electrical nerve stimulation in the Onyx Body S haping and Slim Spa which uses “Madame and Monsieur Electro-Slim Technology”. Hugo Macia (http://www.secretosdelaesclerosismultip ... pot.com.es.) is testing on himself a German made Neuromuscular “jacket” to regain function. See https://www.miha-bodytec.com/en/product/

Previously published on my site MSCureenigmas.net http://www.mscureenigmas.net/

Best regards
Last edited by vesta on Sat Dec 30, 2017 8:27 am, edited 1 time in total.
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Re: Is Dr. Sclafani still around?

Postby ricleal » Mon Oct 01, 2018 6:36 am

For those who stumble on that page, as of October 1st 2018, Dr Sclafani does not do the CCSVI procedure :(

Jut called the clinic...
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Re: Is Dr. Sclafani still around?

Postby 81Charger » Tue Oct 02, 2018 11:57 am

I convinced myself to have it done at least a dozen times only to talk myself back out of it. Now I'll never know if the procedure would have made a difference in my life.
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Re: Is Dr. Sclafani still around?

Postby ElliotB » Tue Oct 02, 2018 12:44 pm

You will never know for sure but ultimately you could have saved your life by not doing it!
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Re: Is Dr. Sclafani still around?

Postby NHE » Tue Oct 02, 2018 8:44 pm

ElliotB wrote:You will never know for sure but ultimately you could have saved your life by not doing it!

Possibly. However, I believe that through the use of IVUS that Dr. Sclafani had revised his procedures over time to make them fairly safe, e.g., minimize damage to the vein wall by not overstretching the vein and also by not using stents in the jugulars. These modifications to the earlier used techniques seemed to reduce complications.
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Re: Is Dr. Sclafani still around?

Postby vesta » Wed Oct 03, 2018 9:54 am

ElliotB wrote:You will never know for sure but ultimately you could have saved your life by not doing it!


Dr Sclafani had enormous experience and his treatment evolved with this experience. I don't think death was even remotely a possibility unless going into a clinic for ANYTHING implies risk of death. That's an exageration. I wonder why he stopped.

Best, Vesta
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Re: Is Dr. Sclafani still around?

Postby ElliotB » Wed Oct 03, 2018 10:45 am

All medical procedures have their risks.

"I wonder why he stopped"

I could think of several reasons. But rather than guess, the fact that he stopped says enough.
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Re: Is Dr. Sclafani still around?

Postby vesta » Thu Oct 04, 2018 6:58 am

ElliotB wrote:All medical procedures have their risks.

"I wonder why he stopped"

I could think of several reasons. But rather than guess, the fact that he stopped says enough.


He stopped because the clinic he is associated with feared being attacked by the Stalinists in the medical-industrial complex, not because of any harm he had done to anyone. Rather the opposite. These same interests got the FDA to ban the procedure for MS patients May 2012 which means medical insurance would no longer pay, and scientists weren't free to develop appropriate stents. It's power and money at play, not science or patient well being. By the way, death is a possible "side effect' for spinal taps. Do you favor banning spinal punctures? MRIs may damage the kidneys. Let's ban those. Actually, the procedures used to come to an MS diagnosis are harmful, and after all that, MDs don't really have a "cure", just potentially deadly drug treatments. How impressive. in my opinion all this scare mongering about the CCSVI procedure is just group think in the service of a tiny vested interest. I'm for free choice, not dictatorship.

Best regards, Vesta
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