Is CCSVI Atlanta legit???

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Is CCSVI Atlanta legit???

Postby magoo » Tue Mar 27, 2018 7:40 am

CCSVI Atlanta claims to have a tech trained in the Zamboni method Doppler. I NEED to know if anyone has experience with this place. The technician is named Lanie Fleet.
My son is having serious issues and we have been searching for someone trained to perform a Doppler study on him.
Please reply if you know anything.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Re: Is CCSVI Atlanta legit???

Postby drsclafani » Tue Mar 27, 2018 4:11 pm

magoo wrote:CCSVI Atlanta claims to have a tech trained in the Zamboni method Doppler. I NEED to know if anyone has experience with this place. The technician is named Lanie Fleet.
My son is having serious issues and we have been searching for someone trained to perform a Doppler study on him.
Please reply if you know anything.

Magoo
they are absolutely legit. Do a good job, stay in touch with docs.
Good place to go now that the easy riders have forgotten the patients.

DrS
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com
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Re: Is CCSVI Atlanta legit???

Postby magoo » Wed Mar 28, 2018 1:32 pm

Thank you Dr. S! I almost cancelled the appointment because the website isn’t working correctly. So, Lanie Fleet has been properly trained and we can feel confident in her ability to diagnose CCSVI?
This is for my 16 year old son who has had episodic Vertigo his whole life. It became constant a year ago and the poor kid’s life has just stopped. He has been tested for everything vertigo related and has seen every specialist and has been given the diagnosis of vestibular migraine. His local doctor believes his jugulars may be compromised and wants us to investigate CCSVI in him. I think it’s remarkable that his doctor is so open minded and so invested in his care that he’s thinking outside the box. Next issue will be finding care if he has CCSVI. Are you still treating patients Dr. S?? We may need you! Please message me.
Thank you,
Rhonda
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Re: Is CCSVI Atlanta legit???

Postby magoo » Thu Mar 29, 2018 5:29 am

I just read this an I’m really discouraged. It seems like any doctor trying to perform CCSVI is being harassed and shut down. Is there anyone who can help people with CCSVI out there?

https://www.medpagetoday.com/special-re ... race/72033
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Re: Is CCSVI Atlanta legit???

Postby CureIous » Fri Mar 30, 2018 5:01 pm

magoo wrote:I just read this an I’m really discouraged. It seems like any doctor trying to perform CCSVI is being harassed and shut down. Is there anyone who can help people with CCSVI out there?

https://www.medpagetoday.com/special-re ... race/72033


I hear ya Rhonda, but that article itself is a POS, like any of the establishment spokesholes, to hell with the science and lets go find a couple idiots like Arata and this other guy who were quick to hang a shingle and start charging up front. I personally knew 3 of Arata's patients long after the fact, the guy does not impress me in the least. Dr. Dake is an asshole too, regardless of whatever benefits I may still enjoy.

In the end however, I know that the science holds true, if applied correctly. Zamboni didn't do it,Dake is about Dake, and at some point in the future the truth will be known. Shoulder shrug.
They protect their own. Always. Thats the takeaway from this article.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Re: Is CCSVI Atlanta legit???

Postby jimmylegs » Fri Mar 30, 2018 5:17 pm

couple questions m, iima what are jr's daily intakes of dietary and supplemental magnesium in mg in relation to existing recommended daily amounts and/or the research supported idea of 7-10mg/kg body weight per day, and do you have any history of serum magnesium levels on file for review?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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Re: Is CCSVI Atlanta legit???

Postby ElliotB » Sat Mar 31, 2018 4:57 am

Until CCSVI is proven effective, there will be no end to the negatives on the treatment. At this time, CCSVI along with 100% of all other treatments are not proven to be effective against MS but are thought to be. And perhaps there is a lot of wishful thinking! Currently, there are probably well over 40 so called MS 'cures' and none of them, not one, has been proven truly effective.

The bottom line is that all commonly thought protocols including CCSVI seem to work well for some but not all. Considering you are dealing with an illness where about 70%-80% do well without doing much of anything, and that claims on most of all these 'cures' don't beat that percentage of success of the general MS population by much if at all, desperation for some will lead to a 'desperation mode' where people are willing to try anything regardless of the dangers (some of the protocols can have very serious consequences and even cause death in some cases).

There is a lot of information on CCSVI on this site including many claims of success and about as many claims of failure.
So is CCSVI good or bad and does it work or not?
Definitely maybe!
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