mrhodes40 wrote:Wouldn't it be great if lots of people came because they heard of it from us and the idea got that much more exposure?
I just want to know if others can repeat or not repeat his results.
One (frustrating) thing I forgot to mention, is during my discussion I was trying to get her to perform at least some of the tests, but it was clear she was not interested, and I did not want to be too confronting when I knew it wasn't going to happen, so I backed off mostly. However, she did say at one point that she had performed similar tests as these on patients, and that it was normally in a hospital environment, on people that were undergoing chemotherapy, and the IV lines were causing failures in the vessels.
Anecdote wrote:The trouble is that Zamboni's results just seem a little too fanciful and many people on this thread seem to be rushing towards this as being the cause of MS...
I am guessing I am one of those "rushing towards this", but I do not
necessarily see this as the root cause of MS.
I have also been down the ABX's route for over a year as well. I also have never really had a headache, or had veins sticking out of my head. But my mother has had some minor vein issues (and a girlfriend, but that may only be important to those that believe in a "contagious" cause in MS
I have read those almost venereal disease web sites). I do not know what this will tell us, but if it is repeatable, to me it is simply more knowledge about this condition, and therefore possibly another treatment option before a "cure" is ascertained. Although many have been "excited" by this study, I can't say there is anyone here that absolutely believes this is the explanation and an end all for MS. To be honest, that type of talk is normally seen in the ABX threads and at CPn Help (I am not speaking of you in particular, but I am sure you have read posts from people who are beyond religious when it comes to CPn & MS)
Anecdote wrote:so I think, all things considered and whether or not Zamboni is right in his tests he is not looking deeply enough to see what is causing the venous problems in the first place in such young people.
Baby steps, baby steps. I would be grateful for any step closer or further forward, even if it leads or confirms what others have or think they have confirmed.
cheerleader wrote:The doctors have consulted with other vascular experts around the country, and they are all dubious about Zamboni's results. However, they are willing to do the testing, but because it is exploratory and investigational- they believe insurance will not cover it. It will cost us several thousand dollars.
"dubious" in my eyes is good, that means if they do duplicate it, it will be impartial, and therefore hopefully more likely correct. As for the cost, I am a little surprised that they would raise this issue, as most "studies" are performed at the medical institute / universities expense (from my understanding). I am sure Zamboni's participants were not charged. And also, the major proportion of the charge, would most likely be the time charge of the doppler professional etc (which may be seen as "machine hiring" charge times); ie their charge. However, in my faxes to the sonographers, I have explicitly stated that I know it would be at my own expense, and that I would be more than willing to pay for the costs. It hasn't been raised at all by them or even hinted even though I have brought up the issue in my initial contact.