cheerleader wrote:Now you will not seem foolish to your neuro
At least not completely wacko
I spoke to one of my neuro's today (who is heading the campath trial in aus) and told him of my result on the doppler. He wasn't overly excited by it. Last time I saw him, I left him a copy of Zamboni's first paper. He told me he has shown it to a number of neurologist colleagues, and one of the responses was "how did this get published?"
This neurologist said that he honestly does not see how these issues could physiologically explain the damage seen in MS; but he obviously has not totally ignored it since he has shown it around.
cheerleader wrote:and you may be on the way to some healing.
At this stage, I am not doing anything specifically in regards to my reflux. yet. So no specific/direct healing from these results.
cheerleader wrote:Does this mean you may have the internal vein scan? Since you "failed" the first round...will you have more testing or is this based on Zamboni's response?
Being the whimp that I am, NO I will not be scheduling myself for any invasive tests. My vascular neurologist (specialises in stroke) did not appear too concerned with the identified reflux. He commented that the reflux was not causing any measurable flow issues in the deep cerebral veins.
cheerleader wrote: Did you get any cool color printouts of your venous return?
I will be sent my results in the coming days. I don't think I will get the colour pictures, however, I did see them on the screen of the doppler machine.
mrhodes40 wrote:According to Zamboni it means there is a stricture that should be released
My guy explicitly said he saw no restrictions, and that my jugular valve was of normal shape and size. I think it is simply a failure of the valve, in not allowing blood to flow in the wrong direction. This is also how I read Zamboni's papers.
mrhodes40 wrote:IS anyone talking along those lines to you at all?
No. He didn't seem too concerned when It comes down to it. I'll see what he writes on my report.
mrhodes40 wrote:Are you scheduled for venography to see the vein itself and look at the structure to try to pinpoint the exact blockage?
ahhh... I'm not banging on their doors to be pumped up with radioactive dye.
mrhodes40 wrote:They said reflux at the jugular valve so does that mean they are saying it *is* a jugular valve issue and they could fix it there? Like no venography is needed?
It is purely a jugular valve issue, and no one has specifically raised the idea of any interventional treatment. When my guy sends me my report, I will be asking some more questions.