Go to Marie's thread and print/e-mail the abstracts and papers she has links to....this is the most recent research on the venous connections to MS. She's done a fabulous job compiling the info for all of us-
It was the blood spots on Jeff's calves at diagnosis that started me on this path 2 years ago....those petechiae and his really weird blood numbers: high SED rate, high liver enzymes, low lymphs and lots of inflammation. His neuro said it had "nothing to do with his MS" and to "ask his GP about it." I couldn't believe that it was unrelated to his first big flare...so that's when my research started.
Jeff's neuro does not know we are going to Stanford on Monday for testing. He just saw her, she commented on how well Jeff is doing, did the reflex tests, asked him if he was still taking his copaxone (yes) and if he wanted any new meds for pain relief (no, thanks), and sent him on his way. He is her "most successful MS patient." (gee, thanks...he's still sick.)
Neuros will not be interested in this research. Again, neuros will not be interested. They will say the vascular connection has been investigated before, and nothing was found. What they do not know is that doppler technology was not previously invented to see blood flow from the brain and spine being blocked in the veins. Venographies have not been done before on MS patients. 7Tesla MRIs are brand new. Chronic cerebrospinal venous insufficiency is a new discovery made just last year by Dr. Zamboni.
If you want to pursue this yourselves find a vascular department willing to read the research. Or wait a couple of days after I talk to our doc, he may have some more suggestions. This research is not going away...it is only beginning. The thing that is different from this and all of the pharma research is that the vascular connection has found something mechanical in the MS body that explains the inflammation and immune response. It is not about fixing a "broken" immune system...it is about removing physical blockage in the veins, and letting the body heal from the venous insufficiency. There will be no big drug $, no fancy clinical trials, no important neurologists making very important pronouncements. IMHO this is a blue collar fix....remove the stenosis from the veins, keep your eye on the venous system and heal. Neurologists are not going to be interested.