Please if you want to be part of the solution then seek the advice of a vascular surgeon who might publish or be patient and wait until it is widely available. Hopefully it won't be too long until the whole thing is understood and a treatment is accepted.
Cure-or-bust went to a cerebrovascular doctor. I don't remember if he was a university guy.
But Cheer and I both went to our local university and looked for a professor of vascular surgery there. Cheer's is cardiovascular, which actually is good because the problem in in the veins in the chest area.
I chose a professor of vascular surgery and head of the department at my local University med school who'd published related materials. Our hope is that these university professors will add to the body of knowledge supporting this work.
We have to get over this idea that somehow neurologists are the "top" doctors or the "best educated" and that they somehow know more than everyone else. It is actually a shorter specialty training wise.
It takes LONGER to be a vascular surgeon that it does to be a neurologist
After the years of MD school are over if you want to be a neuro it takes one year of preliminary studies in internal medicine and 3 of neurology training.
If you want to be a vascular surgeon and do these balloon stents and things it takes 5 years of extra training
to learn everything you need to know to function in that field. They know a heck of a lot that neuro's don't.
Why would anyone expect a neuro to be the "expert" to decide IF the vascular research is valid? What expertise would a neuro use to make that determination?
Please be part of the solution and this grass roots effort to get the research out there. Let the neurologists talk to us about what they know leg tingles this week? bladder troublesome? see the neuro, the vascular guy can't help. But if you can't wait and feel you need to do something now, Please see a vascular doctor and get the dopplers rather than attmepting to convince a neuro there is something here. There is no need to bother a neuro with this; all they can do is ring the alarm.
Be honest: it's going to be VERY upsetting, how could it not be??
By the way, don't get the idea that neuros will be doing these dopplers if it turns out .....no way. You'll be referred to a vascular doctor for the work because that is the peson with the training to do this.
all that having been said, Dr Zamboni himself is not commiting to the idea that this is the CAUSE of MS
Paolo Zamboni, University of Ferrara, Italy, presented the rationale and preliminary results of an endovascular treatment for multiple sclerosis on the third day of the CX Symposium.
Zamboni explained that, though multiple sclerosis is an inflammatory neurodegenerative disease of the central nervous system of unknown origin - widely considered to be autoimmune in nature - it is strongly associated with chronic cerebrospinal venous insufficiency.
This link was supported by Zamboni’s recent study of 65 patients affected by clinically defined multiple sclerosis, along with 235 "healthy" control subjects. Though this study left open the question as to whether venous stenoses are the cause or product of multiple sclerosis.
"I cannot answer this at the moment," Zamboni told CX Daily News. "The interesting thing, though, is that when you can treat the stenosis, you have, in time, an improvement in those patients. Especially in the first phase."
Zamboni’s current, ongoing study is exploring the effects of endovascular treatment for stenosed jugular and azygous veins in a cohort of 100 multiple sclerosis patients, with follow-up to one year.
"I think that this is really promising," he said. "I have good cooperation with the neurologists in my country. And I think that this could be promising if neurologists and vascular people work back to back on this."
I get too excited,
and I freely admit I think that it is the cause of MS, but that is not a proven fact at all at this point. It may be that autoimmunity is a part of this picture too.
That hasn't been ruled out.
And there is no approved treatment at this point either, except if the person you see has a plan like Cheer's doc does. He's not treating MS at all: he's treating a patient for vascular headache. Tomorrow we'll know what's what! I can't wait!!