This Is MS Multiple Sclerosis Community: Knowledge & Support

I do not not much about Taiwan, but I would take vacation in Poland - do not forget Zubrowka and Cracow sausage! I do not think you have it in Taiwan and I do not think you have there such experienced doctors for this case.
Of course, it is only up to you.
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Dear; I cant wait We do find here but they are prohibitively expensive due to high tax import fees on... anything that is good...

I have to see the Neurologist next week anyway; so I guess everything will start from there.


Thank you, be well.

Algis

Well, neurologist is not a specialist in veins, but of course, do inform him.
My neuro does not know anything yet. If, so you should find an angiologist.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Vďaka Erika

I get that well. I will try to have reference on angiography services here and see if there is any Doctor willing to take the challenge (not just making the exam).

I will inform the Neurologist anyway because he seems always so frustrated that he cant do a thing to improve my situation that this could cheer him up a bit. When the Doctors are happy; the patients are treated well

I will follow here and report if any issue - Cheers!

Algis

Gibbledygook,

Can you pass along any information that you have regarding "Salvia"? I have not heard of this and I completely agreement with your comments that this whole issue is vascular related.

Wouldn't that be "saliva"? (water-mouth)

OR:

sage?

http://en.wikipedia.org/wiki/Salvia_divinorum

Hello
This is the first post but have been avidly reading developments in CCSVI. We have contacted Dr Simka but he's fully booked for the rest of the year.We are also trying to find any information/testimony for this treatment for those with progressive forms rather than RnR.Can anyone point to a link or summarise please?

Both Loobie and Marie are SP.
Read about Marie in the regimens section and Loobie's blog in the CCSVI section

Well...
It's been one year since we started taking apart the first Zamboni CCSVI paper and breaking it down into English, sharing other confirming research and wondering about the implications of venous congestion.

What a wild ride.
I miss our little back and forth discussions...they were invigorating and mind-expanding. I feel like our quiet little private cafe has been put in a Rick Steve's travel guide

But this information was meant to be shared. Although things have changed 'round here- the founding moms and pops have moved on, the back and forth has become a din- it was supposed to be this way.

Thanks to everyone for being here for me and Jeff. And to new folks, read this entire thread, learn all you can, find out if venous stenosis and reflux is part of your MS story, and maybe print these 50 something pages out. I know that's what I'm going to do
all best,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Happy Anniversary, Cheerleader!

I've certainly enjoyed the ride and all the wonderful information I've gleened off TIMS is definately icing on my slice of cake. Thanks for putting youself & Jeff out there for us!!

Lora

Happy Anniversary, and thank you so so much for the education and knowledge shared. It is appreciated beyond words!
x

Thanks Cheer!! It is amazing how popular this site is now:)
I hope that because of the "founding moms and pops" many people's situation can be improved.

So thanks again to you Cheer, Marie, Alex, holly, Jeff, Arcee, Cat and everyone else who was brave enough to be one of the first to undergo this treatment.

Happy Anniversary and BIG THANK YOU!
I do not have to explain anybody how happy I am!
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Cheer, thanks so much for all the work you've put into this, it's been quite a year. Hopefully by this time next year, CCSVI will be a mainstream treatment!

Thank you cheer. I'm sure it took a lot of stamina and courage to do what you have done. Happy anniversary.

ozarkcanoer