so glad you're reading thru the thread. Marie's often said, it's shorter than a novel and just as dramatic!
Yes, the Buffalo/Ferrara study was going on since January 2009, but was top secret. Wobbly has signed confidentiality papers, and that's why he/she is quiet.
It certainly is dramatic. I'm part way through page 34, beginning of April '09. You're husband isn't a drinker, as a doctor suggested, instead there are more effects from CCSVI that cause liver problems. Or something like that, I can't seem to wrap my head around the terms you folks are throwing around like normal conversation. You are obviously all well read and understand these terms much better than I. Marie sounds like she could pass as a doctor when she gets going. Anyways, Dr Zamboni is about to do a presentation and I'm guessing a new ccsvi forum(this one) is about to be created. Your husband will be seeing Dr Dake soon and Holly just joined the discussion.
25 more pages to go.
Ha! Maybe finish it before the new year. Yeah, my Jeff didn't drink. What we finally figured out was that he had an hypoxic (lack of oxygen in the brain) incident. He was at high altitude for a week before his first flare, and the jaundice, liver enzymes, petechia and new MS lesions were the markers. Took Dr. Zamboni's discovery to put the pieces together- when we saw Jeff's jugulars, it all made sense. Lots of folks present in their MS flares with elevated liver enzymes....my husband's neuro rolled her eyes, and told him to stop drinking. I got mad and started reading.
Happy New Year!
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS