Second post so I will quickly say hi and thanks to everyone who has gone before my wife and I. My wife has had MS for a few years. I am truly grateful for everyone's input in this list and of course to you folks who pushed so hard to go first. I feel like I know many of you - maybe one day I will. Cheer - I am a great fan of Monk and admired the music long before I knew about Jeff.
We are keen to have my wife tested for CCSVI here in Melbourne, particularly since we're probably travelling to Europe next year. I've read many people's issues about getting medicos to listen to us about CCSVI, so my plan is to try to do this get our GP to be a champion for our cause, rather than going directly to IRs or vascular surgeons - at least in the first attempt. I believe that if I can get a GP to champion our cause then the wheels of progress may turn a little easier. I think this will be a lot easier given the groundwork that's already been done.
What I think is missing is few pages describing the research in terms that the GP will understand - to demonstrate that there's 30 years of vascular research on MS, to show that Zamboni is a respected researcher, to show that the theory is scientific (ie testable) and to show that the results, while remarkable, have also been independently reproduced.
To this end I've been working a a "white paper" about CCSVI, specifically oriented towards my GP. My plan is to email this document - no more than about 3 pages - to our GP to try to hook her interest, and then go discuss it with her in person. The idea is that she can read this in 10 minutes and become convinced - rather than having to invest in reading the research up-front.
Does anyone here think this is NOT a good idea?
Much of what I have written is from memory so there are plenty of bits where I need help finding supporting documents (ie stuff I know is true but I can't remember where I heard it). If anyone's interested in helping then please PM me with your email address and I'll send you a link to it. If I get a good response then I'll make it available to anyone who wants it.
Thanks again to all,