I am Lydia I’m from Greece and my boyfriend has MS. I’ve been reading this forum for quite a long time. I haven’t joined you sooner, because my English aren’t very good.
We’ve been trying to understand ms and after a lot of reading and talking to people we were both convinced that ccsvi must really have something to do with ms. So he did the ultrasound. Left and right IJV are OK. The doctor suspects there might be something wrong with the azygous vein so he asked him to do an angiography. We’ve scheduled to do so within this month.
My boyfriend has lesions mostly in his spine and I think that he would be categorized to the Primary Progressive. I’ve read Dr’s Zamboni protocol and I’m afraid that he belongs to pattern D. That he will have problem with the azygos and lumbar veins which can’t be fixable, at least until now.
I was wondering if there is someone who had problems only with the azygous vein, because almost all of the cases I’ve been reading had also problems with the IJV. I would really appreciate your opinions and your experience.
Thank you all.
(I think my English are coming back to me…it took me a while to write this…but I did it!!!)
Welcome Lydia. I can't recall if we've seen anyone with azygous only issues but we've seen nearly everything, so I think probably yes. It's also possible that there would be something in the jugulars that the ultrasound missed. A lot of times when the doctor gets in the veins it is not the same as when the imaging beforehand led him to expect.
Best wishes and let us know how it goes when he gets the angioplasty done!