Liberation Procedure/Stent placement

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby peekaboo » Mon May 11, 2009 7:10 am

Cheer

In the Regimin Thread you mentioned that Jeff will be getting new MRI and MRV in a couple or mos...Will the rest of us going to stanford need a heads up to be prepared to travel back for follow up?
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Postby cheerleader » Mon May 11, 2009 7:36 am

peekaboo wrote:Cheer

In the Regimin Thread you mentioned that Jeff will be getting new MRI and MRV in a couple or mos...Will the rest of us going to stanford need a heads up to be prepared to travel back for follow up?


Good question...you'll need to speak with Dr. Dake about this. Since you're traveling, maybe he can set something up with local facilities for a check up. I do know it's important to check the stents, make sure they are "patent" and the veins are healing after 2 months. Maybe there will be some research grant money coming in to defray travel costs for participants. Talk to Dr. Dake, he'll give you the answer-
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby skydog » Mon May 11, 2009 8:52 pm

One of my questions that I didn't have time to ask in this mornings talk with Dr. Dake was should I get a fresh MRI since the last one is now been over two years ago. Lots more questions than the brief 15 min talk would allow. Yes !!! Going to Stanford starting June 29th. I am finally going in a direction that feels right. No more hanging in limbo... Pro active at last. Yahoo !!!! Peace and good night. Mark
Plant a BIG Garden Live in the Moment
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Postby cheerleader » Mon May 11, 2009 9:05 pm

skydog wrote:One of my questions that I didn't have time to ask in this mornings talk with Dr. Dake was should I get a fresh MRI since the last one is now been over two years ago. Lots more questions than the brief 15 min talk would allow. Yes !!! Going to Stanford starting June 29th. I am finally going in a direction that feels right. No more hanging in limbo... Pro active at last. Yahoo !!!! Peace and good night. Mark


Woot! Woot! Really excited for you, Mark! Dr. Dake will do his own set of MRIs once you're there, for his records. He likes to do them the same time as the MRVs (same tube), so he gets the complete picture. You should double check with him, to make sure...but I'm pretty sure that will be the protocol for everyone.
Peace out,
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby mrhodes40 » Tue May 12, 2009 4:13 am

Yeah! Good news! more of us all the time!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby skydog » Tue May 12, 2009 6:28 am

Thank you Cheer. I kinda caught him at a busy time yesterday morning. What a great person. Like my grandfather always busy, but seemed to find time for everyone. Peace Mark
Plant a BIG Garden Live in the Moment
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Postby chrishasms » Tue May 12, 2009 6:36 am

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Last edited by chrishasms on Sun Dec 06, 2009 12:04 pm, edited 1 time in total.
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Internal Jugular Vein Valve

Postby Crabby » Thu Jun 11, 2009 10:02 pm

One aspect of the vein clean out that I'm confused about is what happens to the valves in the veins? Isn't there a valve at the bottom of the internal jugular veins (near the connection with the subclavian vein)? How does the catheter used for the angioplasty/stent procedure go through the valve without damaging it?
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